When to tell your child they may have autism?

Hello there, this is my first post here. 

My youngest daughter is 8 and I suspect she has autism. Her behaviour at times is very challenging. I work in education and am by no means an expert on ASC but I have completed courses and training, as well as training about autism in girls. As well as working with children with autism. I recognise lots of signs in my daughter and have always felt she may have autism. Unfortunately due to her other parent disagreeing I never felt able to pursue my suspicions until recently. 

School have had meetings with me to discuss things they've noticed, which are all based around the way she interacts with other children, as well as her anxiety. She was due to see camhs just before lockdown but has now been removed from the list along with everyone else until the covid crisis is dealt with. 

My intention was to see what CAMHS say and then ask for an autism assessment. I've also completed the initial parent questionnaire with a private diagnosis company who said from her score autism is a possibility. I'm aware I could get a private assessment within 6 weeks (probably not at the moment) but the costs are huge. But then the wait for an NHS assessment is at least 18 months.

My question is as per the title really. When did you /would you mention autism to your child? She would not go to assessments and meetings with paediatricians without asking questions, so I couldn't wait till diagnosis surely? But I worry about giving her all this information about autism and why I think she has it, only for them to say no she has not got autism. Has anyone else been in the same boat and what did you decide to do? How did it go down ?

Thanks for reading and I hope I've not rambled on too much! 

Parents
  • Thanks to you all for taking the time to reply. It's very helpful to hear from people with experience in this matter. 

    I will certainly have a look at the books and YouTube channel recommendations.

    NAS5031 very good advice reference talking about my daughters specific feelings and difficulties she faces. Duckbread, thank you for your suggestions, I think that framing the assessment as a way for her to get to know herself better is an excellent idea. It's slightly more expensive here at £2k and this would not be easy to come by for me unfortunately so I may have to wait.

    Plectrum, she already has seen a counsellor for her anxiety but this had to stop due to current covid situation, so I think if I felt it necessary to not disclose the whole truth to her I could use this reasoning alone I think. I'm glad to hear your nephew is doing well now.

    Dusambiguating cynosure, thank you for explaining how to find the search facility, I looked but couldn't find it!

  • No problem - glad you found some of our tips helpful Slight smile

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