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PIP Mandotary Reconsideration

NAS37145

Hi there.

My son was diagnosed in Dec 17.We applied for DLA in Feb 2018 which was turned down. It went to appeal and the decision was overturned in May 19 and my son  received middle rate care and lower rate mobility to be paid until Dec 20.As my son turned 16 in Dec 2019 we had to apply for PIP.As all face to face assessments were cancelled due to Covid 19 it was done via the telephone.After an initial introduction with my son and with the assessors permission it was myself who answered all the questions regarding the application as I represent my son.On receiving the decision yesterday my son scored 0 on all sections.The assessor had written that my son spoke clear and consistent throughout the interview??My son confirmed his name and it was myself who spoke for the remaing 30 mins!!He wrote my son is able to budget and attends the supermarket with myself??What??I shop online for a starter and my son hasnt been to the supermarket with me since about the age of 5!!Although my son isnt currently at school I do take him to and from in the car as he finds bus journeys confusing and overwhelming.At school he has a mentor and a reduced GCSE timetable plus various interventions in place to support his study...the assessor states my son is currently in mainstream school studying GCSEs with no one to one support.The list goes on!!Is it usual for a child to receive DLA after appeal then a mere 12 months later be refused PIP when they hit 16 and nothing has changed with them??How successful is the appeal likely to be??Any advice and support gratefully received!!!!!Many thanks x

Parents

  • I've heard horror stories about PIP, but got mine first time.  I do have other issues apart from ASD, but they seemed mostly interested in the ASD.  The thing to do is when you fill out any paperwork, be as anally retentive in the answers you give.  Every last detail.  For example, if he cant remember to take medication on time, tell them.  if he has constipation from taking meds, tell them.  Imagine the absolute worst day you ever had with him and put it on paper.  if you say he is ok 99% of the time, you wont get it or get it on appeal.  They are interested in your worst day, not the times that arent.

    Ask for a face to face unless its not possible for some reason.  if he has a meltdown in front of an assessor you will probably get it without any issue. My sister took her son who has it to an assessment and he did a meltdown with shouting and screaming.  The woman asked about 5 questions of him prior to it and that was PIP assessment done.  He got it.  Phone calls make it harder to convey exactly how something is.

    Good luck with it all.  i tried and failed to get an appeal through for ESA, so know what an utter PITA it is.

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