Hi Everyone,
I have a 7yo with behavioural problems that school initially indicated might be linked to ASD. She was put on the pathway for a diagnosis aged 5 and now at almost 8, after going to panel twice, we still have no diagnosis. After speaking to friends they have advised that the system they use on the NHS is not geared up very well to assess females and maybe going private might be a better option. I understand that getting a diagnosis won't change her, I just think it would help us and school to understand her a little better. I am terrified of her going to middle school next year without any sort of diagnosis.
An OT spent some time with her and said she has Sensory Modulation Dysfunction. The most recent knock back from the pathway said that she didn't meet all of the criteria necessary for a diagnosis but outlined the following:
Experiences difficulties with emotional regulation and behaviour management
Does not alter her style of interaction with adults compared to peers
Does not tend to share in other people's interests
Can interrupt or talk over others and sometimes controls interactions
Often tangential and steers conversation towards her interests
Subtle difficulties with synchrony and reciprocity
Can misread social situations
Showed difficulty sharing enjoyment with others during assessment at times
Shows difficulty recognising the emotions, thoughts and feelings of others
Can misinterpret others' intentions
Talks quickly and relatively loudly
Can be overly physical in her interactions with peers and shows limited awareness of appropriate personal space
Can be impulsive – this sometimes affects peer relationships
Gets involved inappropriately in other people's conversations
Shows some difficulties with peer relationships and friendships
Can be easily upset by peers and is not tolerant of others
Finds it difficult to make choices at times
Easily frustrated if unable to do something or makes a mistake
Has an unusually strong sense of fairness and justice
Difficulties processing and following instructions in class
Very fidgety and finds it hard to remain seated, showing sensory-seeking behaviours
Can be sensitive to the feel of clothes against her skin
Do you think it would be worth us going down the private route and if so, where the hell do we start?
