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Private Diagnosis - 7 Year Old Girl

NAS67101

Hi Everyone,

I have a 7yo with behavioural problems that school initially indicated might be linked to ASD. She was put on the pathway for a diagnosis aged 5 and now at almost 8, after going to panel twice, we still have no diagnosis. After speaking to friends they have advised that the system they use on the NHS is not geared up very well to assess females and maybe going private might be a better option. I understand that getting a diagnosis won't change her, I just think it would help us and school to understand her a little better. I am terrified of her going to middle school next year without any sort of diagnosis. 

An OT spent some time with her and said she has Sensory Modulation Dysfunction. The most recent knock back from the pathway said that she didn't meet all of the criteria necessary for a diagnosis but outlined the following:

Experiences difficulties with emotional regulation and behaviour management

Does not alter her style of interaction with adults compared to peers

Does not tend to share in other people's interests

Can interrupt or talk over others and sometimes controls interactions

Often tangential and steers conversation towards her interests

Subtle difficulties with synchrony and reciprocity

Can misread social situations

Showed difficulty sharing enjoyment with others during assessment at times

Shows difficulty recognising the emotions, thoughts and feelings of others

Can misinterpret others' intentions

Talks quickly and relatively loudly

Can be overly physical in her interactions with peers and shows limited awareness of appropriate personal space

Can be impulsive – this sometimes affects peer relationships

Gets involved inappropriately in other people's conversations

Shows some difficulties with peer relationships and friendships

Can be easily upset by peers and is not tolerant of others

Finds it difficult to make choices at times

Easily frustrated if unable to do something or makes a mistake

Has an unusually strong sense of fairness and justice

Difficulties processing and following instructions in class

Very fidgety and finds it hard to remain seated, showing sensory-seeking behaviours

Can be sensitive to the feel of clothes against her skin

Do you think it would be worth us going down the private route and if so, where the hell do we start?

Parents

  • I did the private diagnosis route - my company health insurance paid for it - your daughter's diagnosis may be covered if you have insurance with your employment.

    The process is easy - google who the best person is in your area, speak to the insurance to see if they are on their approved list, see your gp to get a referral and then make the appointment.       It can all be done in a couple of weeks.       If you're paying, just miss out the insurance part.      Cost can be between £1k to £2k if you're paying.

    My diagnosis took the form of a long chat where I guess the consultant was going through all the standard questions in the form of a conversation.      No-one else involved - I have no parents and siblings are unavailable for questions about childhood etc.       Result report was a couple of weeks later.    This was 10 years ago when I was 42 - I'm very, very Asperger's.

Reply

  • I did the private diagnosis route - my company health insurance paid for it - your daughter's diagnosis may be covered if you have insurance with your employment.

    The process is easy - google who the best person is in your area, speak to the insurance to see if they are on their approved list, see your gp to get a referral and then make the appointment.       It can all be done in a couple of weeks.       If you're paying, just miss out the insurance part.      Cost can be between £1k to £2k if you're paying.

    My diagnosis took the form of a long chat where I guess the consultant was going through all the standard questions in the form of a conversation.      No-one else involved - I have no parents and siblings are unavailable for questions about childhood etc.       Result report was a couple of weeks later.    This was 10 years ago when I was 42 - I'm very, very Asperger's.

Children
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