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Scared for the future

NAS66396
over 4 years ago

My Son is 4 and is currently under various specialists for suspected ADHD and Autism. 

Can anyone tell me how long it took for the overall diagnosis? We’ve been lucky and have had paediatrician appointments and were due to go to another appointment next month. My son is also under a Speech Therapist, Specialist Nursery Nurse, Child Therapy, we’ve been asked to take part in the Webster Stratton course and were more than willing to we’ll do anything to help our little one. But nobody is saying how long all the assessments are going to take. I’ve heard it can take years. We’re having all these appointments and they just seem to be going nowhere. 

My sons ADHD is pretty severe he has no road safety, he runs off becomes overwhelmed very easily. Both the Autism and ADHD are making life hard for him he’s not mixing with other children and has his own 1-1 support in nursery.

I’m just so worried for the future I had a pretty bad time at school with bullying and I keep thinking people are going to be mean to him and single him out when he does go to full time school or worrying how he will cope as he can only do 3 hours a day in nursery he would no way cope with a full day. Things just seem so overwhelming I just can’t stop worrying about him.

Parents
  • over 4 years ago

    Hi ,

    I'm sorry to hear that you've been worrying about your son's diagnosis/future. We know that this can be a very overwhelming time for a parent.

    You may find it useful to contact our Parent to Parent service who offers emotional support to parents and carers of children or adults with autism. This service is confidential and run by trained parent volunteers who are all parents themselves of a child or adult with autism . 

    You contact the team on 0808 800 4106. Please leave a message and the team will call you back as soon as possible at a time that suits you, including evenings and weekends. Alternatively you can use contact the team via web form: https://www.autism.org.uk/services/helplines/parent-to-parent/enquiry.aspx

    You may like to contact our Autism Helpline team who can provide you with information and advice such as the diagnosis timeline. You can contact the team via telephone on 0808 800 4104 (Monday to Thursday 10am to 4pm, Friday 9am to 3pm). Please note that the Helpline is experiencing a high volume of calls and it may take a couple of attempts before you get through to speak to an advisor. Alternatively, should you prefer to send a message, you can do so via their webform:

    https://www.autism.org.uk/services/helplines/main/questions.aspx

    I hope this helps,

    ChloeMod.

Reply
  • over 4 years ago

    Hi ,

    I'm sorry to hear that you've been worrying about your son's diagnosis/future. We know that this can be a very overwhelming time for a parent.

    You may find it useful to contact our Parent to Parent service who offers emotional support to parents and carers of children or adults with autism. This service is confidential and run by trained parent volunteers who are all parents themselves of a child or adult with autism . 

    You contact the team on 0808 800 4106. Please leave a message and the team will call you back as soon as possible at a time that suits you, including evenings and weekends. Alternatively you can use contact the team via web form: https://www.autism.org.uk/services/helplines/parent-to-parent/enquiry.aspx

    You may like to contact our Autism Helpline team who can provide you with information and advice such as the diagnosis timeline. You can contact the team via telephone on 0808 800 4104 (Monday to Thursday 10am to 4pm, Friday 9am to 3pm). Please note that the Helpline is experiencing a high volume of calls and it may take a couple of attempts before you get through to speak to an advisor. Alternatively, should you prefer to send a message, you can do so via their webform:

    https://www.autism.org.uk/services/helplines/main/questions.aspx

    I hope this helps,

    ChloeMod.

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