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Newly diagnosed 10 year old and I’m not sure what happens next

NAS65238

Hello, 

my 10 Yo daughter was diagnosed in December, when I asked doctors what happens next they said go to National autistic society for advice. 
I’ve spent time looking through the website but I’m a bit over whelmed and not sure where to go and what to do. 
She’s very behind in school in reading, writing and spelling. Others she seems to be ok enough to get through ( so they say, but it took till year five for them to tell me how behind she was in anything) 

she suffers with anxiety esp with school. She masks well at school but does let’s it all out when home.

her ADOS assessment went well for her to get the diagnosis, they said she was very young and not where you would usually see a 10 year old. I haven’t had the full report yet, hopefully won’t be too long.

i have a meeting booked it with SENco at school on 20th to ask about EHCP but have been told by the school she won’t get one, the doctor said she should. 

I really don’t know what my next step is for my daughter. And I’m so worried about senior school as that’s the next big change and step, what school, transport (I don’t drive) 

If anyone can offer help of advice I would be very great full 

we live in Kent x 

many thanks 

  • Hi ,

    You may find the following page our website useful:https://www.autism.org.uk/about/diagnosis/children/recently-diagnosed.aspx

    Post-diagnosis can be a very nervous time for any parent, but we're here to help you. In this link you can find information on the effects on your family, getting some practical support as well as telling your child about their diagnosis.

    If you have any other questions, or wanted some advice, you may like to contact our Autism Helpline team. They can provide you with information and advice on your issue. You can call them on 0808 800 4104 (Monday to Thursday 10am to 4pm, Friday 9am to 3pm).Please note that the Helpline is experiencing a high volume of calls and it may take a couple of attempts before you get through to speak to an advisor.

    You may like to contact our Parent to Parent service who offers emotional support to parents and carers of children or adults with autism. This service is confidential and run by trained parent volunteers who are all parents themselves of a child or adult with autism . 

    You contact the team on 0808 800 4106. Please leave a message and the team will call you back as soon as possible at a time that suits you, including evenings and weekends. Alternatively you can use contact the team via web form: https://www.autism.org.uk/services/helplines/parent-to-parent/enquiry.aspx

    I hope this helps,

    ChloeMod

  • Hello NAS65238,

    It’s good you are looking for support on here.  I have a daughter in year 8 and we are on the way to a diagnosis.  For the transition to secondary we undertook CBT counselling for her, we paid privately and that did help.  

    I don’t know about any schools in Kent but hopefully someone will have better advice.  

    I’d ask the sendco at your current school which secondary would be most beneficial to your daughter, often one school has a reputation for having a more nurturing SEN department.  You need to build a positive relationship with the Senco, there are lots of things they can put in place to help and they will. 

    Before you decide on which school book an appointment to have a tour around the school, think of all the questions you’d like to be answered,  could you organise a meeting with the senco about your daughter before she starts there?  Make a list of all her needs and what you feel would help her.  The primary will hopefully also be very involved in this so the transition is as easy as possible for her too.  Try and request your daughter is placed in a form class with some friends from primary.  Some schools have SEN parent coffee mornings or organise transition days and activities.

    I understand how worrying the transition is and still I cross my fingers and hope and pray she’s had a good day - everyday!  We’ve had ups and downs and things have gone pretty well really given all consideration of how anxious my daughter is at the minute.  She’s found a little group of children she relates to, not sure if she considers them to be her friends but I would say she’s made friends and progressed. Every day has its challenges but going along taking it day by day has helped.  Celebrating the little triumphs and trying to solve the problems. 

     I wish all the best for you and you daughter x