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Help with sensory issues

Louise1980

Hello, first of all let me introduce myself. I’m Louise, mum to Mia who is 14 and currently undiagnosed. She has always been a quirky child and I’ve suspected for some time she is somewhere on the ASD spectrum. We have now decided that we should look at getting a diagnosis as she is struggling in many areas at school and home. Mia dislikes any where that is busy, noisy and gets very overwhelmed. This then makes her anxious and frustrated. This can happen even if she made the suggestion to go somewhere. We don’t want to not be able to go out so I’m wondering if you have any good ideas with coping mechanisms? Mia describes that everything sounds so loud when she is out and that her back gets all tense so she feels extremely tense. She is always exhausted when we get back and needs time in her room by herself. 

sorry for the long post, 

looking forward to getting to know you all x 

Parents

  • Hello Louise,

    I’m a mum also and my daughter is 12 and we are in the diagnosis process for her.  Just up to the bit where we are awaiting the OT assessment. 

    I’ve read the replies from the other members and think all are wonderful ideas and I will be noting some of those down that apply to my daughter.  This is a very helpful place to come to  and the community members are so helpful. 

    Have you spoken to the SENDCo at your daughters school ? They can put things in place for her so for example maybe a special allowance to leave lesson a bit earlier so it’s quieter on the corridor or a card so she can leave lesson and go to the SEN base if she’s overwhelmed.   Some lessons trigger anxiety for my daughter such as music and PE - she says they are too noisy and chaotic but she knows she can leave if she needs to and just knowing this lessens the anxiety levels. 

    My daughter likes to know the details of everything we are doing so I’ve got a calendar that’s just for her so she can visualise the days.  Also I will draw out the day for her like a timeline as her anxiety starts if she’s not in the house for a certain time, the diagram / timeline helps her and the family a lot.

    I’ve read that girls mask all the time and try their best to fit in and be like their peers.  That’s exhausting for them, after school my daughter is shattered.  The anxiety has started  already about going back in next week, been keeping her busy!  

    Wishing you and your daughter all the best x

Reply

  • Hello Louise,

    I’m a mum also and my daughter is 12 and we are in the diagnosis process for her.  Just up to the bit where we are awaiting the OT assessment. 

    I’ve read the replies from the other members and think all are wonderful ideas and I will be noting some of those down that apply to my daughter.  This is a very helpful place to come to  and the community members are so helpful. 

    Have you spoken to the SENDCo at your daughters school ? They can put things in place for her so for example maybe a special allowance to leave lesson a bit earlier so it’s quieter on the corridor or a card so she can leave lesson and go to the SEN base if she’s overwhelmed.   Some lessons trigger anxiety for my daughter such as music and PE - she says they are too noisy and chaotic but she knows she can leave if she needs to and just knowing this lessens the anxiety levels. 

    My daughter likes to know the details of everything we are doing so I’ve got a calendar that’s just for her so she can visualise the days.  Also I will draw out the day for her like a timeline as her anxiety starts if she’s not in the house for a certain time, the diagram / timeline helps her and the family a lot.

    I’ve read that girls mask all the time and try their best to fit in and be like their peers.  That’s exhausting for them, after school my daughter is shattered.  The anxiety has started  already about going back in next week, been keeping her busy!  

    Wishing you and your daughter all the best x

Children
  • in reply to Mum on a mission :)

    Thank you everyone for your reply’s! Very much appreciated. Sound cancelling head phones is a great idea and will definitely be buying some. I always let her have as much time as she needs by herself, her room is her safe place and I encourage her to relax in there. could you please tell me how the diagnosis process has been for you? I’m going to make a doctors appointment tomorrow and will try and speak to her school on Tuesday. But it would be good to have an idea of what to expect. 

    louise.