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Parent opinions on positivity of getting a diagnosis please :)

Mum on a mission :)

Hello all

i read on here a lot and post a little bit if I think I can help someone in a similar position to our family

i understand the diagnosis opens up more support but I’d like to hear from other parents what that exactly means in a practical sense.   I know parenting / communication and behaviour courses become available and school takes notice of needs more but what else ?

What are the practical positives of a diagnosis? 

I am thinking we have to get this as our daughter will hopefully go to college and uni and we won’t be there and I hope a diagnosis means she will get pastoral support in the university / college she chooses ? 

Background: We are on the diagnosis path for our 12 year old daughter.  Early indications match with what I’ve read up on that she would be in the past diagnosed with Asperger’s Syndrome.  We are awaiting the OT appointment now.

Hope to hear back from other parents as to the practical benefits of a diagnosis for the family and child x

Parents

  • Hi, Mum on a mission :) I found getting a diagnosis at 15 very difficult and have really suffered from mental health issues, but I am now at university and the diagnosis has meant I get the right accommodation and someone to contact if I'm ever struggling. I actually took to university like a duck to water and have needed very little support because I was naturally ready to go. I may have started slightly later than a lot of students - last year, when I was 21, nearly 22 - but that's fine; there are plenty of neurotypical young people who aren't ready to start at uni at 18 for all kinds of reasons. I now live VERY independently, in a studio flat where I do all my own cooking and cleaning and washing and shopping, I balance my academic and social life well, I have some lovely friends. I don't want to show off but I just want to give you some hope that people on the spectrum can achieve good things: I'm a writer and have had a short collection of poetry published by a small press, and I'm moving to Australia (alone) to study for five months come February as my lecturers recommended me. Being diagnosed as on the spectrum isn't a walk in the park, and your daughter will most likely need plenty of support from you and perhaps professionals throughout her life, but hopefully the diagnosis will help her understand herself and as you say, get her pastoral support etc. I have really struggled in the past but I now seem to have (mostly) come out the other side as it were, and I lead a very full and exciting life. All the best to you and your daughter.

Reply

  • Hi, Mum on a mission :) I found getting a diagnosis at 15 very difficult and have really suffered from mental health issues, but I am now at university and the diagnosis has meant I get the right accommodation and someone to contact if I'm ever struggling. I actually took to university like a duck to water and have needed very little support because I was naturally ready to go. I may have started slightly later than a lot of students - last year, when I was 21, nearly 22 - but that's fine; there are plenty of neurotypical young people who aren't ready to start at uni at 18 for all kinds of reasons. I now live VERY independently, in a studio flat where I do all my own cooking and cleaning and washing and shopping, I balance my academic and social life well, I have some lovely friends. I don't want to show off but I just want to give you some hope that people on the spectrum can achieve good things: I'm a writer and have had a short collection of poetry published by a small press, and I'm moving to Australia (alone) to study for five months come February as my lecturers recommended me. Being diagnosed as on the spectrum isn't a walk in the park, and your daughter will most likely need plenty of support from you and perhaps professionals throughout her life, but hopefully the diagnosis will help her understand herself and as you say, get her pastoral support etc. I have really struggled in the past but I now seem to have (mostly) come out the other side as it were, and I lead a very full and exciting life. All the best to you and your daughter.

Children
  • in reply to Proud Snowflake

    Dear Proud Snowflake,

    Thanks so much for your lovely, positive and supportive message.  Wow, you sound amazing and congratulations to you in all your achievements. They are huge achievements, you’ve taken everything out there available to you and gained so much. You know this already. This is brilliant to hear.  I am hopeful for my daughter and I will help her all I can, I just want her to be happy and believe in herself and I hope that she will have an independent and happy life.  She loves English literature, writing, drama and art so we encourage her in all her favourite subjects.  It seems the diagnosis will be a huge support to her and my family I am pleased to hear the university have supported you so well.  Thanks again for your time in replying and your kindness.  If there is a way to send a DM or private message with a link to your poetry I would love to buy a copy.  I’m not the best technologically minded person!

    Anyway congratulations to you and thank you again and all best wishes to you for your exciting adventures x