I just need to share

Pluh! What a stressful month. Our son was diagnosed over the summer aged 5. Although it was no surprise it is only now that I coming to realise the enormity of 'forever'. We had a hellish half term - he defied me at every opportunity, used quotes from movies at inappropriate times calling people 'hey fishface' after watching Scooby Doo, fought with his brother and lashed out at all around him. Back at school I hoped the routing would help him and then realised I had forgotten his ballet kit needed for his lesson that day. Of course we had massive melt down about it and I had to take him home - feel so guilty, it was probably an avoidable incident if only I had remembered the kit. His emotional highs and lows are exhausting, he ranges from anger to frustration to inconsolable upset to happiness, joviality and joking around i nthe space of five minutes. I am running out of parenting ideas and feel ever so lonely. My husband is lovely but just doesn't really get it and I just really needed to share this with people that might understand what I am feeling - am I totally alone, is it this hard with a child with ASD, what can I do to make it easier for him and his brother who, bless him, is struggling to adapt too. AAAAAARGH, I am so exhausted and upset by this all and I just dread that it is just going to get harder as he is already standing out more and more amongst his peers. Need some reassurance or help, please!

Parents
  • Thank you all - it is really hard going. I miraculously thought the routine of school would bring about a sense of calm. SO daft! He walloped someone on the head because he misheard them say 'give me a high 5' he thought they said 'give me a head 5'. Oh for the world to be so literal, it's annoying as he has a good sense of right and wrong but it seems to disappear so easily and he cannot understand it.  Do any of you belong to a support group where you meet up in person? Is it worth it? I find the thought quite terrifying but the help this forum gives me is monumental. Love my sons to pieces, just want them to find life a bit easier. Hugs tonight!

Reply
  • Thank you all - it is really hard going. I miraculously thought the routine of school would bring about a sense of calm. SO daft! He walloped someone on the head because he misheard them say 'give me a high 5' he thought they said 'give me a head 5'. Oh for the world to be so literal, it's annoying as he has a good sense of right and wrong but it seems to disappear so easily and he cannot understand it.  Do any of you belong to a support group where you meet up in person? Is it worth it? I find the thought quite terrifying but the help this forum gives me is monumental. Love my sons to pieces, just want them to find life a bit easier. Hugs tonight!

Children
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