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I just need to share

Ettie

Pluh! What a stressful month. Our son was diagnosed over the summer aged 5. Although it was no surprise it is only now that I coming to realise the enormity of 'forever'. We had a hellish half term - he defied me at every opportunity, used quotes from movies at inappropriate times calling people 'hey fishface' after watching Scooby Doo, fought with his brother and lashed out at all around him. Back at school I hoped the routing would help him and then realised I had forgotten his ballet kit needed for his lesson that day. Of course we had massive melt down about it and I had to take him home - feel so guilty, it was probably an avoidable incident if only I had remembered the kit. His emotional highs and lows are exhausting, he ranges from anger to frustration to inconsolable upset to happiness, joviality and joking around i nthe space of five minutes. I am running out of parenting ideas and feel ever so lonely. My husband is lovely but just doesn't really get it and I just really needed to share this with people that might understand what I am feeling - am I totally alone, is it this hard with a child with ASD, what can I do to make it easier for him and his brother who, bless him, is struggling to adapt too. AAAAAARGH, I am so exhausted and upset by this all and I just dread that it is just going to get harder as he is already standing out more and more amongst his peers. Need some reassurance or help, please!

Parents

  • You are very kind, thank you. Idea about the calendar is a good one - might invest in a wallchart and make a visual timetable for him to help him understand what is coming up. We moved from the state sector to private education as the state school was not meeting his needs and he was one of 64 in his year, he is much happier where he is and his teachers are very supportive. Will try the book about Aspergers - have tried other books but at moment he cannot see beyond the view that it is not fair his brother can behave like this and he can't! Aaaargh! This forum is very helpful in that I don't feel alone so much. Thank you all.

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  • You are very kind, thank you. Idea about the calendar is a good one - might invest in a wallchart and make a visual timetable for him to help him understand what is coming up. We moved from the state sector to private education as the state school was not meeting his needs and he was one of 64 in his year, he is much happier where he is and his teachers are very supportive. Will try the book about Aspergers - have tried other books but at moment he cannot see beyond the view that it is not fair his brother can behave like this and he can't! Aaaargh! This forum is very helpful in that I don't feel alone so much. Thank you all.

Children
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