I just need to share

Pluh! What a stressful month. Our son was diagnosed over the summer aged 5. Although it was no surprise it is only now that I coming to realise the enormity of 'forever'. We had a hellish half term - he defied me at every opportunity, used quotes from movies at inappropriate times calling people 'hey fishface' after watching Scooby Doo, fought with his brother and lashed out at all around him. Back at school I hoped the routing would help him and then realised I had forgotten his ballet kit needed for his lesson that day. Of course we had massive melt down about it and I had to take him home - feel so guilty, it was probably an avoidable incident if only I had remembered the kit. His emotional highs and lows are exhausting, he ranges from anger to frustration to inconsolable upset to happiness, joviality and joking around i nthe space of five minutes. I am running out of parenting ideas and feel ever so lonely. My husband is lovely but just doesn't really get it and I just really needed to share this with people that might understand what I am feeling - am I totally alone, is it this hard with a child with ASD, what can I do to make it easier for him and his brother who, bless him, is struggling to adapt too. AAAAAARGH, I am so exhausted and upset by this all and I just dread that it is just going to get harder as he is already standing out more and more amongst his peers. Need some reassurance or help, please!

Parents
  • Hi, I can't say I completely understand but I had a hellish half term with my daughter too. She defied me & started behaving badly because her routine was broken. She also repeats tv episode clips but not normally with any meaning. I am finding it hard to come to terms with at the moment that Ella will never quite be the same child that I have had for the past  3 years as she will have this label. 

    I wish I could offer some advice, I suppose all I can say is your doing the best you can & yes it could have been avoided but your only human & it's just one of those thing's we all forget stuff. I hope that your son settles back down again soon. Take care x 

Reply
  • Hi, I can't say I completely understand but I had a hellish half term with my daughter too. She defied me & started behaving badly because her routine was broken. She also repeats tv episode clips but not normally with any meaning. I am finding it hard to come to terms with at the moment that Ella will never quite be the same child that I have had for the past  3 years as she will have this label. 

    I wish I could offer some advice, I suppose all I can say is your doing the best you can & yes it could have been avoided but your only human & it's just one of those thing's we all forget stuff. I hope that your son settles back down again soon. Take care x 

Children
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