Please please help

My brother (19) was diagnosed with Aspergers 2 years ago.

A year after his diagnosis he reached a crisis point where he couldn't go back to college, or eat, or engage. My parents spoke to the crisis team and he eventually engaged again but he'd missed a month of college so they wouldn't let him come back though he really wanted to.

Since then he has hugely deteriorated. He started seeing a therapist who specialises in Aspergers - we had to go private because there were absolutely no LA services for him. He was working a weekend job but struggled to maintain that. He got another job as a carer but the travel was hard for him. He currently is at home and very isolated.

I'm really worried because generally he has always spoken to us (me, my brother and sister) about how he is - he has never really spoken to my parents. We are all a lot older than him (9 - 11 years older) and have always tried to support (though not very well I think). In the last year his communication with us (he prefers watsapp) has often been very abusive. He blames us for his life. I think he isn't accepting autism and sees it incredibly negatively. He will no longer see a specialist and in the last month has also stopped talking to any of us. When we see him we seem to be a trigger for a meltdown/violent behaviour. He is generally not violent but in the last few months there have been frequent attacks on us - he is very physical and agressive. This week he attacked my parents. My mum called the crisis team who advised her to call the police. My brother had calmed down and was asleep when the police came - they woke him up and spoke to him and were gentle but I am very worried about the impact on him. I don't think my mum should have called the loljce but she was very scared (she is 60) and he was attacking both my parents.

We are at a loss of what to do. We are the trigger for him and also don't know how to help him at all. What can we do? He is also almost completely nocturnal and spends his nights pacing around the house which he does when extremely anxious. My parents leave food for him to eat and he sleeps during the day. We are at a loss of how to reach him. Please help

Parents
  • Hi NAS49522,

    I appreciate that the situation with your brother must be stressful at the moment.

    You may like to contact our Autism Helpline team who can provide you with information and advice on your options in this situation. You can contact the team via telephone on 0808 800 4104 (Monday to Thursday 10am to 4pm, Friday 9am to 3pm). Please note that the Helpline is experiencing a high volume of calls and it may take a couple of attempts before you get through to speak to an adviser. Alternatively, should you prefer to send a message, you can do so via their webform:

    https://www.autism.org.uk/services/helplines/main/questions.aspx

    I hope this helps,

    Dani Mod

Reply
  • Hi NAS49522,

    I appreciate that the situation with your brother must be stressful at the moment.

    You may like to contact our Autism Helpline team who can provide you with information and advice on your options in this situation. You can contact the team via telephone on 0808 800 4104 (Monday to Thursday 10am to 4pm, Friday 9am to 3pm). Please note that the Helpline is experiencing a high volume of calls and it may take a couple of attempts before you get through to speak to an adviser. Alternatively, should you prefer to send a message, you can do so via their webform:

    https://www.autism.org.uk/services/helplines/main/questions.aspx

    I hope this helps,

    Dani Mod

Children
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