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Please help... A sudden change in my 2 year old

NAS64264

Hi

It's my first time here, please forgive me if this is in the wrong forum.

My beautiful daughter is 27 months. She's always been so energetic and happy and just never sat down. She was on time with all her milestones until now.

I had noticed a few little things along the way which were mainly not pointing a far, moreso in books etc at pictures. And she flapped her hands a stiffened up a little when she got excited. 

Lately, she seems to have been swapped for another child, especially this week. She used to say at least 50 words but now she just doesn't seem interested at all and won't answer me most of the time. It's absolutely heartbreaking. It feels as though I've lost my baby. I've been up for days and nights crying at the loss. I don't understand what has happened or what I've done. I've tried ever so hard to help her but she just seems to distracted and not interested in me. It makes me so sad that she'd rather play alone and not look at me. She doesn't tell me what she wants or anything. She just runs around and babbles constantly.

She also recently started copying the script from her favourite episodes of child's TV. 

I don't know what to do.. I'm trying to get her assessed but the doctors are saying she's ok because she HAS said 50 words before, and she isn't autistic. I feel so sad and scared I don't know where to turn for support. 

Please, if anyone else has any input.. I'd be so grateful.

Xxx

Parents

  • Hi! I'm really sorry to hear that you're going through this at the moment! I imagine that it must be quite bewildering for you? 

    Both myself and my youngest daughter (2yr 8mths) are diagnosed with ASD. My daughter was diagnosed quite young because she also has global developmental delay so it was obvious from a very young age, to both us and the professionals that there was 'something' going on, she's still pre-verbal. However, I would consider it concerning if your daughter was talking and then has suddenly lost most of her vocabulary. If your GP is dismissing the idea of there being any issue then maybe contact your local health visiting team and ask them to come and review your daughter. They would then write a report to your GP with recommendations for any further investigations that they might think necessary.

  • in reply to Kitsune

    Thank you for your reply. I've been back to another gp today and I've been fobbed off again saying she's normal. Something isn't right and I'm beside myself with worry. I've contacted the health visitor and they don't see any urgency at all with it. They keep telling me they're fully booked and to wait for an appointment. I can't just sit here anymore. I don't know what to do to help her. I haven't a clue at all.

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  • in reply to Kitsune

    Thank you for your reply. I've been back to another gp today and I've been fobbed off again saying she's normal. Something isn't right and I'm beside myself with worry. I've contacted the health visitor and they don't see any urgency at all with it. They keep telling me they're fully booked and to wait for an appointment. I can't just sit here anymore. I don't know what to do to help her. I haven't a clue at all.

Children
  • in reply to NAS64264

    This must be awful for you! No one seems to share your sense of urgency! Did the health visitor give any indication of when there would be an appointment?

  • in reply to NAS64264

    I understand that you are very upset, anybody would be concerned for there child as you are, and probably frustrated at getting nowhere with this but when you say "I can't just sit here any more" that might be exactly what you need to do. I'm not being trite when I say that, what I mean is give your self a moment to think about how your doctors appointments went, did you give then all the information that you could have or might it be better to write a list to show the doctor? A list of 'symptoms' might also help you to see a bigger picture and make connections, give you information that you didn't realise was there or that you could add. You can then decide if something other than or as well as Autism might be bothering your daughter in which case you do what you would normally do when your daughter is poorly, if she isn't poorly and you feel it is Autism then you have a better arsenal to hand so you make a another appointment to see your GP. A feeling of helplessness is normal at times like this so give yourself something helpful and productive to do, this will help you move into a more positive and proactive  mind set, something that is important when we don't feel fully in control.  

    Unlike I don't have experience of small children with Autism but I think it is safe to say that your health visitor is right in that there is no need for an expedited appointment for an Autism check but armed with you list of symptoms your health visitor or doctor might see something that you don't. 

    I really do understand that you want to help your daughter and we often think of helping as 'doing' and 'fixing' but sometimes it's also just being a calm safe place in the here and now. 

    Look after you too.