Time for ASD Specialist GP's?

Hello

I am a high functioning sufferer of ASD. I am also a late diagnosis member of the lost generation, being diagnosed approx 3 years ago at the age of 43. (i am now 46)

over the past 3 years i have been to see approximately 5 different doctors and asked about their knowledge of ASD.


I have yet to encounter one GP that has more than the most basic understanding of the complex umbrella disorder and thus,

feel like us sufferers of ASD have been left out of professional medical health care, due to incompetence on the part of the GPs in question.

I was thinking that when considering how prevalent the condition is (thought to be over 1%), while not being so common that a majority suffers

from the condition (thus making knowledge on the area extremely common). 

I would say that there is a strong argument to say that this common minority condition warrants the need for GP's to set up specialist practices specifically

for this target market, so that this target market can receive high quality professional treatment form practitioners who not only know a little about their condition,

but have a good comprehensive knowledge on this specialist and much misunderstood field.

Better still, it would be awesome to have a surgery or practice set up that has not only a well versed GP who has an in-depth understanding of all the conditions

that come under the ASD umbrella, but a practice that also has a specialist clinical psychologist who is specialist in this area, an occupational therapist who is specialist in this area,

and a specialist psychiatrist who is specialist in this area.

A one stop shop to treat the 1% of the population, in their area.

I mean, the island that i live (jersey), there is a good but overly in demand service for evaluation and diagnosis, there is a drop in service for supporting people with ASD

that includes people who are occupational therapists, care workers etc. 

Which is great if things are going well.

However, what if one needs something such as medical treatment for meds for anxiety, sensory overload meltdown, aggressive behaviour.

That is unique to ASD (as the causes are different to other conditions).

Then, who does the person with ASD turn to for this advice, when most GP's and even psychiatrists are fairly clueless to the complex issues found in ASD.

In Jersey, we have a population of over 110,000.

Which means that we have more than 1,000 with a formal diagnosis.

Despite this, i still find it hard to find a GP or even a psychiatrist who knows what that are talking about, or who isn't in denial that the condition even exists.

Please consider.

Thanks 

Parents
  • There are 2 problems to this - the first is we are supposed to be about 1% of the population - so practically insignificant when compared to drug addicts, alcoholics, pregnancies, cancer sufferers etc.    There's a limit to how many courses someone can do and keep all the possibly conflicting information in the front of their mind.

    Second is the whole 'GP' thing - general practitioner - they are not experts in anything - they are front-line triage for whatever comes through their door - anything more complicated than a cold or a sprained ankle and they will normally refer you onto someone else - and that's where you meet the total incompetence of your local MH team.    These people are supposed to be qualified and experienced but are totally clueless - their 'go to' treatment is to call you depressed and drug you up until you go away - job done, boxed ticked.

  • Hello. Yes, I understand your concerns and agree to some extent.

    However, if you consider the population of the UK. Which is over 66 million now. Even 1% of 66 million is a significant amount of people, and i feel warrants addressing the needs of this minority but still significant in numbers. 1% of ASD sufferers in the UK is then at least 660,000 people. which is over half a million.

    The numbers of GP's vary per amounts of individuals. with Scotland apparently having the most per head, with 76 GPs per 100,000.

    Although due to the nature of ASD, i would say that if the NHS were to set up a specialist service for ASD suffers, the ratio between ASD specialist GPs and patients would need to be higher.

    As for the entire GP training thing, yes, I agree, the GP degree is not long enough to cover all areas of health in detail and to include all variations. I therefore would propose that what the UK now need is a comprehensive course that explains all the ASD related conditions in detail, from diagnosis, to support to treatment (psychotherapy, occupational therapy, psychiatric based etc)..

    Such a qualification course could either be a supplemental post graduate course, or perhaps even be a specialist route in itself.

     Separate to GP.

    So when an ASD patient has an ASD problem. Then they can book an appointment with the ASD specialist.

    When an ASD patient has a normal non ASD related health issue, then they can see a normal GP who has a basic understanding of ASD.

    Make sense?

  • The maths still doesn't work out - we're still just 1% no matter how many people there are under each surgery - and what special treatment are you expecting?    If you're diagnosed, the 'specialists' (local MH team) should already know of you and be 'supporting' you.      What do you expect your gp to do differently?

  • I think that if the NHS listened, then they could set up specialists in each major city for helping people with ASD based issues. That would be different to being mistreated by GP's who do not have a clue. or by a factionalised service that prioritises diagnosis and other areas such as improving social interaction.

    If you suffer from high levels of anxiety and meltdowns, then your anxiety is a higher priority than hanging out with some people being nice to you so you don't get isolated/.

Reply
  • I think that if the NHS listened, then they could set up specialists in each major city for helping people with ASD based issues. That would be different to being mistreated by GP's who do not have a clue. or by a factionalised service that prioritises diagnosis and other areas such as improving social interaction.

    If you suffer from high levels of anxiety and meltdowns, then your anxiety is a higher priority than hanging out with some people being nice to you so you don't get isolated/.

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