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Second opinion

Catlover

We were told recently that my daughter doesn’t have ASD. She didn’t take it well, and I had unfortunately expected that outcome, since she masks very well, and appears very sociably able. They said they couldn’t gather enough info during our meetings so she scored low, and that’s the conclusion they have come too.

I don’t agree with some of the findings on the report, and some comments are untrue, or reported incorrectly. Ie. Things I didn’t say. Her interests and routines weren’t even mentioned, and they said she probably has anxiety.

I would like to get her referred to somewhere that deals with girls. She’s very bright, and articulate but suffers socially along with her sensory issues (which they didn’t agree were an issue).

Can anyone point me in the right direction of what to do next? We’re seeing the GP later today as she’s suffering mentally. Skipping school, refusal to go, not eating, sleeping all the time through mental exhaustion and wants to ‘end it all’ as she feels she can’t go on how she is...

Parents Reply
  • in reply to Catlover

    Please go through the questions with her to provide you observational examples of things:-

    hyperfocus, specialisms, taking things literally, strong/weak senses (Smell, Touch, Taste, etc), twitches (I have air drummer legs), scripted replies, etc.

    Some things having more than one answer, depending on how the question wording is written.

    Please note that under the Equality Act 2010, you do not need a diagnosis but it may help.  

Children
  • in reply to Eccentric1

    Thanks. She has all of the above and more!  To be fair, I wrote a 5 page report of things she does, says, etc...and gave it to the people assessing her so they could get a sense of how she is day to day.

    On the report they said her hand tapping and ‘drummers’ legs were down to her being anxious. However, she does these things at home all the time when she’s relaxed or doing something pleasant....

    Im aware she doesn’t need the diagnosis to get help, but I feel she needs to hear it, to help make sense of why she’s like she is, and why she’s so different from her peers and other people. She keeps saying she feel ‘stupid’ because no one can see the real her, since she struggles with simple things, yet in reality, she’s very bright...more so than than the high achievers in her year.