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Second opinion

Catlover

We were told recently that my daughter doesn’t have ASD. She didn’t take it well, and I had unfortunately expected that outcome, since she masks very well, and appears very sociably able. They said they couldn’t gather enough info during our meetings so she scored low, and that’s the conclusion they have come too.

I don’t agree with some of the findings on the report, and some comments are untrue, or reported incorrectly. Ie. Things I didn’t say. Her interests and routines weren’t even mentioned, and they said she probably has anxiety.

I would like to get her referred to somewhere that deals with girls. She’s very bright, and articulate but suffers socially along with her sensory issues (which they didn’t agree were an issue).

Can anyone point me in the right direction of what to do next? We’re seeing the GP later today as she’s suffering mentally. Skipping school, refusal to go, not eating, sleeping all the time through mental exhaustion and wants to ‘end it all’ as she feels she can’t go on how she is...

Parents

  • I'm 28, female, and I'm at the first steps of getting a possible diagnosis.

    I'm bringing these to the next session:

    • AQ (shows I'm probably on the spectrum)
    • EQ (shows I have "too much empathy")
    • RAADS-R (shows I'm probably on the spectrum)
    • Samantha Crafts non-official checklist for females with Asperger (I agree with over 80% which would put me on the spectrum)

    I'll also refer to the YouTube video "Tony Attwood - Aspergers in Girls (Asperger Syndrome)".

    And I'll bring the article "It all made sense when we found out we were autistic" that I found on BBC and "The cost of camouflaging autism" that I found on spectrumnews.org. I'll also bring some studies I found about being misdiagnosed with borderline when you actually are on the spectrum.

    I was diagnosed with depression and borderline personality disorder.

    I'm not sure how much my therapist knows about autism, I really have no idea, but he is young so maybe he is better educated about autism in females, but based on what I have read, I want to be prepared. We don't need to know how to build an engine or be fascinated by trains. I have also at times had a good social life, and taken parts in activities and had relationships.

    I am sad to hear your daughter is feeling so bad. I hope you get the help and answers you need. How old is your daughter?

  • in reply to Cellar Door

    Thank you for your reply. My daughter is 15. I guess we started the journey at age 11. She was having sessions with the school nurse at that point, who thought she was OK, maybe a bit stressed! She was self harming and anxious.... we were referred for assessment at age 14. We had 2 meetings over the course of a year, and this is the result....!

    I will keep fighting my daughters corner until someone sees sense. She can’t go on how things are, and I can’t sit back and watch her go on a downward spiral. Her life is unbearable, and so is watching her try and live it.

    Good luck with your journey. Too many females are getting missed in the diagnostic process. I myself am likely on the spectrum. (Lots of family history too). I didn’t need to fill out the questionnaires to find this out about myself, but they helped me make more sense of things. I do not want to be assessed until my daughter has a diagnosis.

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  • in reply to Cellar Door

    Thank you for your reply. My daughter is 15. I guess we started the journey at age 11. She was having sessions with the school nurse at that point, who thought she was OK, maybe a bit stressed! She was self harming and anxious.... we were referred for assessment at age 14. We had 2 meetings over the course of a year, and this is the result....!

    I will keep fighting my daughters corner until someone sees sense. She can’t go on how things are, and I can’t sit back and watch her go on a downward spiral. Her life is unbearable, and so is watching her try and live it.

    Good luck with your journey. Too many females are getting missed in the diagnostic process. I myself am likely on the spectrum. (Lots of family history too). I didn’t need to fill out the questionnaires to find this out about myself, but they helped me make more sense of things. I do not want to be assessed until my daughter has a diagnosis.

Children