Adult son without diagnosis - help please.

My son is 23 and at university studying a Masters in Physics. I am going to apologise now for the rambling post but would like to give all information.

When he was at primary school, the school raised concerns and he was observed over many months by an outside agency, they gave him a diagnoses of Aspergers and I proceeded to set in motion the formal diagnosis with doctors. However after the 1st hospital meeting my husband said he did not want to go forward with this and it was stopped (many arguments ensued but that is another story!)

I helped my son as much as possible, both his primary, and to some extent, his secondary school were supportive and we all worked towards helping my son manage.

Fast forward now to university, the first two years went well however his third year was difficult with quite a few meltdowns leading to him resitting this year. 

I have three issues:

recently his meltdowns have increased, mainly due to having to address situations which are unfamiliar but which he knows are important and therefore perpetuating the meltdown - these situations also include greater 1-2-1- interaction with his tutors for example presentations. These meltdowns have increased at home during the summer months and I am worried about him returning to uni.

The student support at university continues to state without a diagnosis they cannot help him over and above what they have already done - which is precious little.

My son has now agreed to go to the doctors but wants to do this on his own. I understand this but know he will not give the full story.

I don't know what help anyone can give me but I needed to get this off my chest and am hoping for something, anything. Thank you. 

Parents
  • Hi & welcome to the forum. I've never parented an autistic child / young adult but I have been one :-).

    You said that he might not give the full story at the Drs (actually I have experienced this with my own children and ageing father in law too!) - is this because he wants to hold back or does he simply forget in the moment? Many people here will attest to the benefits of writing down what you need to say to the GP and taking it along, either to refer to or even leave behind for the GP to keep.

    Hope that helps a bit.

Reply
  • Hi & welcome to the forum. I've never parented an autistic child / young adult but I have been one :-).

    You said that he might not give the full story at the Drs (actually I have experienced this with my own children and ageing father in law too!) - is this because he wants to hold back or does he simply forget in the moment? Many people here will attest to the benefits of writing down what you need to say to the GP and taking it along, either to refer to or even leave behind for the GP to keep.

    Hope that helps a bit.

Children