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Borderline ADOS score of 9

NAS63694

Hi all,

A bit of a long shot, looking for other people’s experiences. My son is on the pathway to a diagnosis and as the last step has had an ADOS. The therapists words were his score is 9 which is borderline, it’s below the cut off of 10, but also too high to ‘not be’.

Everyone keeps saying that the ADOS is not the be all and end all and is only part of the diagnosis process - but I was just wondering if anyone elses child had scored below the cut off but still received a diagnosis.

Many thanks in advance.

Parents

  • Hi, I've just whipped my own diagnostic report out of the drawer to answer this. The cut off for Autism is 10 but the cut off for Autism Spectrum Disorder (Aspergers) is 7. I can't imagine that it would vary too much by diagnostic system. I was diagnosed according to the ICD-10 though, do you know what system they are using to assess your son?

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  • Hi, I've just whipped my own diagnostic report out of the drawer to answer this. The cut off for Autism is 10 but the cut off for Autism Spectrum Disorder (Aspergers) is 7. I can't imagine that it would vary too much by diagnostic system. I was diagnosed according to the ICD-10 though, do you know what system they are using to assess your son?

Children
  • in reply to Kitsune

    Thanks for your reply,

    I haven’t got the official report in writing yet but she didn’t mention the 2 cut offs - only the one. When were you diagnosed? I’m finding a lot of older posts that mention the 7 cut off for Autism but nothing of recent.

    I don’t know if it’s something to with recent and upcoming changes to the main diagnostic manuals, that 'autism spectrum disorder' (ASD) is now likely to become the most commonly given diagnostic term. 

    She said she has known someone who’s not scored on the ADOS to get a diagnosis but only when they’re older.