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Soiling issue

Justme

My son is six now and seven in June he has been soiling since may last year. There has been many a reason that has cropped up ie/ sensory, germs on the toilet and not knowing he wants to go. He is not nor was constipated. It all started in school and now its all the time. We ahve tried social storys having cleaning stuff to clean toilet before he goes. We have done a poo fact file. We have tried getting him to start cahnging himself. None have worked. At present i have a lady helping me from a parent class she is from learning disabilites team but her help comes to a end at the end of the class in 3 weeks. My son was refered to the learning disabilites team but they won't take him on as he doesn;t have a learning disability. HE is under the childrens incontience  team but they only have a couple of ideas as her expertise is in the medical side and my sons soiling is behvoural! I am now worried as whats going to happen if the incontience team runs out of ideas who can i get to help?? 

Parents

  • We had this problem when John (Asperger's) was four and in reception, and then again when he was in a special needs project that a teacher ran from her home. It persisted into secondary school though he was by then only soiling at home, not at school. A lot of it had to do with staying on the computer for hours and not noticing what was going on below.

    We even ended up with the gastro team at the Royal Free, though thankfully Dr Andrew Wakefield had left by then. They couldn't find anything physically wrong.

    I'm afraid it only got solved when he went into a residential CAMHS unit for nine months (a whole school year) in year 8. It seems to have been more prevalent when he's been unhappy and confused at school. This is a much more common problem among kids on the autistic spectrum than anyone acknowledges. The NAS did a Help!2 day on it last year which was brilliant, but I hear their funding for these days has been taken away.

    Just telling you all this so you know you are not alone. I think the only solution in the end is 24 hour watchfulness and avoidance of things that trigger it. But if it started up at school it is worth looking into whether he is having problems at school, or whether it's something simple like not liking to go into the grotty school toilets (many children don't, even children not on the spectrum).

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  • We had this problem when John (Asperger's) was four and in reception, and then again when he was in a special needs project that a teacher ran from her home. It persisted into secondary school though he was by then only soiling at home, not at school. A lot of it had to do with staying on the computer for hours and not noticing what was going on below.

    We even ended up with the gastro team at the Royal Free, though thankfully Dr Andrew Wakefield had left by then. They couldn't find anything physically wrong.

    I'm afraid it only got solved when he went into a residential CAMHS unit for nine months (a whole school year) in year 8. It seems to have been more prevalent when he's been unhappy and confused at school. This is a much more common problem among kids on the autistic spectrum than anyone acknowledges. The NAS did a Help!2 day on it last year which was brilliant, but I hear their funding for these days has been taken away.

    Just telling you all this so you know you are not alone. I think the only solution in the end is 24 hour watchfulness and avoidance of things that trigger it. But if it started up at school it is worth looking into whether he is having problems at school, or whether it's something simple like not liking to go into the grotty school toilets (many children don't, even children not on the spectrum).

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