high functioning autism toddler how long did you wait?

I’m very desperate now.

I have been dealing with the challenging behaviour of my 33 month old now for over 12 months. I asked health visitor for help twice but was told to wait until he was 3yrs. 3 months after me raising concerns his behaviour becomes so very challenging that his nursery raises concerns too as he is harming staff as well as other children.

Health visitor finally comes to see his behaviour for herself and makes a referral. (Speech and language, hearing tests and educational doctor) I have waited 3 months now and heard nothing from the nhs.

Can I ask how long did you wait for a first appointment?

My son has recently started going to bed late and waking through the night (gone from 12 hours sleep to 6 hours sleep) which is making his behaviour all the more difficult.

i guess it’s maybe a postcode lottery?

Parents
  • Gosh I'm so sorry to hear. Our son is 2. I'm worried he will do the same. We have been told a 22 month waiting list for diagnosis. Surely there must be a better way. I heard some private places don't get accepted. 

  • Thank you for your reply. I’m just looking for the support services to start and not the actual diagnosis. I’m looking for intervention ASAP to help manage the behaviour while he’s so young as I fear it will be far harder to help him once he gets older. He is not an only child but he is my youngest. I had an idea something was not quite right but felt blessed to have a very quiet happy baby. violence the hardest for me to accept and hoping for some sort of miracle that he will Learn to stop this. How do you find your little ones behaviour? My son started pulling hair around age 2 (for no reason) this progressed to scratching and pushing. 

Reply
  • Thank you for your reply. I’m just looking for the support services to start and not the actual diagnosis. I’m looking for intervention ASAP to help manage the behaviour while he’s so young as I fear it will be far harder to help him once he gets older. He is not an only child but he is my youngest. I had an idea something was not quite right but felt blessed to have a very quiet happy baby. violence the hardest for me to accept and hoping for some sort of miracle that he will Learn to stop this. How do you find your little ones behaviour? My son started pulling hair around age 2 (for no reason) this progressed to scratching and pushing. 

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