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Circadin / Melatonin not working

Mum on a mission :)
over 4 years ago

hi. I wonder if anyone has found the 2mg Circadin doesn't have an effect? Paediatrician said we can double the dosage to 4mg but that doesn’t work. Lovely daughter is still up and down stressing about getting to sleep. When we doubled the dosage the Paediatrician said sometimes Melatonin doesn’t work and if that’s the case they may withdraw it !!! I’m horrified at this, my daughter needs to get to sleep but what am I to do if the medicine isn’t working ? 

Juat wonder if anyone else has experience of circadian 4mg not working ? How did doctors deal with this situation ? 

thanks in advance x

Parents
  • over 4 years ago

    I didn't know I was autistic until I was an adult so am unsure of the child route, however, I struggle to sleep naturally. I currently take quetiapine, which is an antipsychotic drug, as its the only sedative that works for me. I have tried a number of other prescribed sleeping tablets, including heavy doses of antihistamine, but they did nothing for me. I also put lavender on my pillow at night as it helps to relax me as I doze off.

    As I'm currently heavily pregnant I'm trying to nap in the day as I'm exhausted. I use a diffuser to fill my room with a nighttime essential oil blend and lie under a weighted blanket. I still really struggle to nap but it does make me feel a lot more relaxed. 

    http://www.idaromatics.co.uk/results.asp?searchtext=night+time&x=0&y=0

    https://gravityblankets.co.uk

    I've heard really good things about Glow Lullaby so have invested in their essential oils and am buying her a stargazing projector to use as part of her sleep routine

    https://glowdreaming.com/products/glow-lullaby-organic-essential-oil

Reply
  • over 4 years ago

    I didn't know I was autistic until I was an adult so am unsure of the child route, however, I struggle to sleep naturally. I currently take quetiapine, which is an antipsychotic drug, as its the only sedative that works for me. I have tried a number of other prescribed sleeping tablets, including heavy doses of antihistamine, but they did nothing for me. I also put lavender on my pillow at night as it helps to relax me as I doze off.

    As I'm currently heavily pregnant I'm trying to nap in the day as I'm exhausted. I use a diffuser to fill my room with a nighttime essential oil blend and lie under a weighted blanket. I still really struggle to nap but it does make me feel a lot more relaxed. 

    http://www.idaromatics.co.uk/results.asp?searchtext=night+time&x=0&y=0

    https://gravityblankets.co.uk

    I've heard really good things about Glow Lullaby so have invested in their essential oils and am buying her a stargazing projector to use as part of her sleep routine

    https://glowdreaming.com/products/glow-lullaby-organic-essential-oil

Children
  • over 2 years ago in reply to NAS50301

    I recently bought this weighted blanket for the autistic teenager son of a dear friend. My friend noticed a big improvement in his son's sleep since the first night. He is now falling asleep much quicker and he is using it also on the sofa during the day. It also costs less than gravity and the quality seems excellent. My friend was very pleased with the present.

  • over 4 years ago in reply to NAS50301
    I bought a similar weighted or, how it is also called, gravity blanket for my 11 yo son who is autistic. We were very pleased with the purchase. During the first month of using, we noticed the improvement in sleep: he was falling asleep faster and waking up only a few times. His level of anxiety has clearly become lower. Our boy used to be tired since the very morning, but now he has more energy and looks more friendly. I also heard that white noise helps improve sleep quality, but I have never tried it personally. www.melacomfort.co.uk/.../how-to-find-the-best-weighted-blanket-for-autism
  • over 4 years ago in reply to NAS50301

    Can I ask how you are getting on with quetiapine in relation to it helping with your sleep? Also how long have you been taking it?

    I ask because I was prescribed it for insomnia also but I am finding that the longer I've been on it the less effective it is, I only take 25mg but if Im really struggling to sleep I will up it to 50, I've been taking it 5 years now. Dont get me wrong it does still help just not as much as it did, its probably like any drug, Ive probably now got a tolerance to it.

  • over 4 years ago in reply to NAS50301

    Thanks so much for replying.  The blankets look great.