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Disability Facilities Grant

Hellbaby

Hi, I'm new! Bit of background- my 3yo dd is awaiting diagnosis (appointment in December) but paed is certain that she is on the spectrum, she has no language, very little social interraction and no imaginative play. She has 1-1 support at nursery and recieves Higher Rate DLA. We were advised by the Clinical Psych to apply for the DFG as she has severe sleep issues and we desperately need another bedroom. She shares with her baby brother at the moment but most nights I sleep with her in the lounge as she keeps everyone else awake.

Anyhoo, I was sent the Self-Referral form by Social Services, but it seemed to be aimed at adults with physical disabilities- I filled it in as best I could and included a strong letter of support fom the pych. I got a call from a lady at Children's Services today saying that the OT wouldn't even do an assessment as we don't fit the criteria, ie, she doesn't have a physical disability Yell Everything I have heard/read about this grant says that it is available to anyone with a disability and I'm really not happy about her needs being dismissed like this. We're in Norfolk and the Psych told me she knew another family in the area with similar issues who got the grant.

Any suggestions what to do next? Thanks for reading Smile

Parents

  • Hi 

    my 3 yr old son just been diagnosed with asd and as we live in a 3 bed already with my older 6 yr ols son so the boys have there separate bedrooms but money is tight as i dont work but husband does. Last month i gave my council his report which confirmed he has asd and wrote a letter explaining his difficulties why he cannot share a room with his elder brother example sleep issues, attacking his brother etc and recently just had a letter saying we have been accepted for LHA for a 3 bed house. We really didnt think we would get it but you need a letter from a doctor and need to explain how it affects other siblings as well as yourself and your daughter.

Reply

  • Hi 

    my 3 yr old son just been diagnosed with asd and as we live in a 3 bed already with my older 6 yr ols son so the boys have there separate bedrooms but money is tight as i dont work but husband does. Last month i gave my council his report which confirmed he has asd and wrote a letter explaining his difficulties why he cannot share a room with his elder brother example sleep issues, attacking his brother etc and recently just had a letter saying we have been accepted for LHA for a 3 bed house. We really didnt think we would get it but you need a letter from a doctor and need to explain how it affects other siblings as well as yourself and your daughter.

Children
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