"He doesn't act autistic"

I had to hold my tongue yesterday when someone told me that my son doesn't act autistic. They said he blends right in at the church kids group  and that they don't know why I am worried about him going to secondary school in two years . They couldn't understand why I would be worried about it. It made me really cross. 

  • Only one reply "please stop using social media for 2 days and educate urself. There is alot of help available for people like you"

    Ending your conversation with "by the way you don't look insensitive ignorant idiot but you are"

    God bless all our kids! 

  • I actually told someone that I was autistic and they said, "No you're not." Apparently I don't "seem" autistic. Why do people think they know you/your loved ones better than you do? So annoying.

  • My son is 9 and to me and my husband we are starting to think he stands out more because of his unusual behaviour and how he is getting so tall. He went back to school into year five with a cuddly cat for extra support.

  • My Husband and son are both really good at masking. I have been told before by teachers that my son is fine, its just his age and told that compared to other special needs children in the same class he is fine as they are 'clearly much more autistic than him'!!! aahhggg! it makes me so frustrated. My son is 8 at the moment but i am dreading when he goes to senior school (high school?), as it was around that age that my husband started to be labeled as a trouble maker etc, no one even noticed there was anything wrong untill i met him and made him go for a diagnosis when he was 31. Luckily because of this we were aware of the signs and my son has had a diagnosis now, but people are still ignorant, even teachers, who still frequently tell me that he isn't that bad!! I think you just have to learn to ignore most of what other people say, because they are not specialists in the field and they do not know your child like you do or how hard he works to appear like everyone else.

  • I hate it when people say u don't look autistic or we wouldn't gave known if u hadn't of told us 

  • Thank you. These are all really good points. Being autistic myself and being put on the spot, I just smiled and nodded. So easy to work out what you should have said after the event. 

  • You should say...

    "No, he 'acts' neuro-typical so that he blends right in... he's speaking your language rather than his own - can you imagine how exhausting that is for him?"

    ...or my preference when my spoons are low...

    "No... you don't act like an ignorant twat... but it doesn't mean you aren't one"



  • There is a vast difference between 'acting' autistic and 'being' autistic ~ or as the expression goes, “If you’ve met one person with autism ~ you’ve met one person with autism,” by Dr Stephen Shore.



  • I bet your son doesn't float in a beam of light with a halo around his head either, in which case he doesn't look religious either... Sorry, a bit over the top maybe but you see my point?

    It seems your son is very talented at masking then which will surely take it's toll when transitioning through high school. I imagine his most autistic behaviour comes in the safety and privacy of his own home, meaning it's invisible to most. 

    If you feel the need to explain to somebody compare it to depression. Some people with depression having the biggest smiles and you'd never, ever know. This doesn't mean they are not suffering with depression however. But, some people are just ignorant and obviously know it all. Personally I'd be tempted to quiz these types on their 'expert' knowledge of autism to see them slip up but it's probably best to smile and blank them out.