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Got diagnosis yesterday

WilliamsMummy

Hi all, 

To be honest im a little stuck for words at the moment. I knew my little man had an ASD but to hear it from a proffessional has really thrown me for some reason. Friends of mine are saying im going to have a fight to get any help for him. How true is this? I dont even know where to begin. Do i have to contact the other agencies or do they contact me?

Help! im lost and need some advice from someone who has been here already

Parents

  • Hey,

    My little boy was diagnosed only a couple of weeks ago, and like you, even though I'd known for a long time (nearly a year) it was still hard to hear it confirmed.

    My son's pre school have been amazing, it was them that picked up on the early warning signs, that I put down to 'being behind on his speech'. They are applying for his statement for his primary school next year.

    I'm in the process of filling out the lenghty DLA form, its tough to have to put down in words all the negative things about your child, but hopefully it will benefits things in the long run.

    We are still waiting to hear about when our parents course on autism will take place.

    There is lots of support out there, as little or as much as you want. The biggest struggle for me was actually getting the assesment carried out for a diagnosis.

    I found having my son's name down on the local childrens centre, which I was informed about through his pre school, has been wonderful - he has attended two communication workshops, and a school holiday group specifically for children with special learning needs, and that was all within 6 months.

    Wish you all the best x

     

     

Reply

  • Hey,

    My little boy was diagnosed only a couple of weeks ago, and like you, even though I'd known for a long time (nearly a year) it was still hard to hear it confirmed.

    My son's pre school have been amazing, it was them that picked up on the early warning signs, that I put down to 'being behind on his speech'. They are applying for his statement for his primary school next year.

    I'm in the process of filling out the lenghty DLA form, its tough to have to put down in words all the negative things about your child, but hopefully it will benefits things in the long run.

    We are still waiting to hear about when our parents course on autism will take place.

    There is lots of support out there, as little or as much as you want. The biggest struggle for me was actually getting the assesment carried out for a diagnosis.

    I found having my son's name down on the local childrens centre, which I was informed about through his pre school, has been wonderful - he has attended two communication workshops, and a school holiday group specifically for children with special learning needs, and that was all within 6 months.

    Wish you all the best x

     

     

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