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looking back

crystal12

hi - my son's an adult now in his 20s.  I've been thinking back from when he 1st was diagnosed + all the things that happened along the way to where we are today.  I've often thought, despite all my reading on the subject, that I wish I'd known then what I know now.  There's obviously the need to understand autism + how it affects your child so you can do your best for them in every way.  Then there's "the system" : education, social services, dwp!!  There's an awful lot (sometimes with the emphasis on "awful" with regard to the system) to get your head around.  Struggles along the way, successes + failures.  Most of the time with the system it comes down to money.  They're short of it so assessments are done bearing that in mind - well that's my opinion.  So you get what they can afford, not always what you need.  Then the battles start.  Also depending on the area you live in.  Some areas have invested more than others, so there may be an appropriate school in your area or not.  Supported living homes which are staffed by autism-specific staff once your child is of adult age - maybe, maybe not.  As I said at the beginning, just wish I'd known then what I know now!

Parents

  • hi - I wrote the original post because I know I made mistakes at times, altho not at the time. There's so much to learn + that takes time.  I was too ready to accept what some professionals offered me, thru ignorance of what we really needed....that sort of thing.  Then things go wrong.  Then you've got to fight to get what you need.  Learning along the way.  There is much more available now than there was when my son was little, but money seems to be even tighter now.  So, no we can't got back + change things, no crying over spilt milk, as they say. We learn from our mistakes, but it can be a hard learning process.  Just felt like a bit of a moan at the time I think, because we shouldn't have to go thru what we sometimes have to go thru + it's our children + us that suffer whilst it's all going on.  

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  • hi - I wrote the original post because I know I made mistakes at times, altho not at the time. There's so much to learn + that takes time.  I was too ready to accept what some professionals offered me, thru ignorance of what we really needed....that sort of thing.  Then things go wrong.  Then you've got to fight to get what you need.  Learning along the way.  There is much more available now than there was when my son was little, but money seems to be even tighter now.  So, no we can't got back + change things, no crying over spilt milk, as they say. We learn from our mistakes, but it can be a hard learning process.  Just felt like a bit of a moan at the time I think, because we shouldn't have to go thru what we sometimes have to go thru + it's our children + us that suffer whilst it's all going on.  

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