• Replies 10 replies
  • Subscribers 65 subscribers
  • Views 6281 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

DLA????

lala85

Hi,  I receive DLA FOr my son but started receiving it before his diagnosis of ADS.  I only receive mid care and low mobility.  I did question this when they first told me as I can not leave my son at anytime whilst out as he runs when sensory overload and does need support with most things, dressing, eating etc.  

Can anyone tell me if they receive high care and mobility for their child with ADS?  I know this is a personal question but I am looking into buying my son resources, pressure blankets etc but with what I receive i could not do this at the moment. 

  • Hellsbells said:

    Oh yes, we only applied once we'd got a diagnosis, so I don't know what difference that made to our application.

    Hellsbells

    The diagnosis isn't meant to matter. However from previous experience, they take you more seriously. I was turned down on the basis of my Autism (I don't have a proper diagnosis) and my hyperacusis. I have been told by someone who has met me once I won't get it. She knows nothing about the issues I have.

  • Scorpion0x17 said:

    If it helps, and it will become the case when he's older anyway - think of the DLA as not being paid to you, but being paid to him to help him with his needs.

    that does help thanks :)

  • If it helps, and it will become the case when he's older anyway - think of the DLA as not being paid to you, but being paid to him to help him with his needs.

  • Yes you are his Mum, but the DLA is to compensate for some of the extras you have to put in, as you say. We used to feel a bit guilty too, but then we look at the fact that between us, my husband and I have had to significantly drop our working hours so that someone is around at home for our son. That's a big drop in family income. Then there are the days leave we have to take to accompany him on school trips (if it's on a working day for us both) or the extra traveling we have to do taking him to appointments or places our other kids could go on their own. It all adds up. And I know we don't look at our kids like that really, but in the cold light of day, it's more expensive and stressful bringing up a child with a disability, so this helps out.

    Hellsbells

  • I'm still debating applying! I keep thinking 'but I'm his mum, I shouldn't be paid for it!' But then I think of the amount of money I spend due to his ASD.. Has anyone ever applied and been turned down for it for ASD? Just sounds so strange to me doing it.. But then I don't think of my ds as 'disabled'? 

  • Hi there.

    We get mid level for care and low for mobility and we're grateful (and possibly a bit surprised) to get even this! Our son doesn't run off though, and is now ok at reliably finding his way round our (very small) village. We did wonder if we'd lose some of our DLA when we recently had to reapply, but we didn't.

    Oh yes, we only applied once we'd got a diagnosis, so I don't know what difference that made to our application.

    Hellsbells

  • Don't worry about what rate of DLA you are getting, just be thankful we are still able to claim.  The highest rate is for severely immobile people, so kids on the spectrum are highly unlikely to qualify. 

    Have you tried applying for carer's allowance?  Ask at your local post office for a form.Smile

  • hi - we've considered a couple of times over the past 2-3 yrs putting in an appeal to up my son's mobility component.  To be honest, we've backed off because we're concerned they might actually lower it when they go thru their process of reconsidering.  Then we'd have to appeal, wait ages + hope it got reinstated or even  upped.   Sorry to be a doom + gloom merchant.

  • I get high care and low mobility. Ive been getting it for the last 2 years without a diagnosis but my son has just got his diagnosis after 5 years of fighting for one. Hopefully sending in his full report with the diagnosis we'll get his mobility up to full rate as he too runs and doesnt stop!