Hello
We are currently in the process and very soon should have a diagnosis for my daughter who is 3 and a half. Although I am feeling better now, when I realised she had ASD last year, it was a very dark time in my life. I found it hard coming to terms with the future being a lot more challenging and uncertain. I would love to hear from people who have been through similar situations who can offer me some insight into what the future may hold for her.
She does talk and can tell me what she wants, but does have echolalia and can bring up things quite random and not relevant to what we are doing at times. I find it hard getting her attention and sometimes getting an answer out of her. Or she will think I’m asking her something else, I’m not sure she has great understanding. She does play with other children to a certain extent and likes to join in with children having fun. She is lucky to have an older sister who she will get involved with. She doesn’t want to wear nappies as ‘they are for babies’ but has accidents very often. She did have a phase of telling me when she wanted to have a wee but that seems to have stopped lately. She doesn’t like going to the toilet and hates washing her hands. She likes to jump! And can have strange arm movements. I struggle getting her into nursery quite often, but when I pick her up she is excited and says she had a good day!
My family who know little about ASD believe she will be fine and will have a bright future, will get a job. My concern is because we have these clear signs at a young age that she is quite bad. I want to and will do all that I can for her to make sure she will flourish, she is so adorable I smother her with love. But for me I find it hard in my head to let go of thinking about our future.
Thank you x
