In shock at new diagnosis. How did you all feel?

Long story short my son has had noticable problems since he started nursery at the age of 2 cut to now hes just turned 5 and i was told by his consultant he would see him once more after he turned 5 and then take him to the panel. So yesterday we went to this app which was meant to be the last before panel and was floored to say the least when he just came out with diagnosis of asd. If im honest i think i am still in shock . I am gutted and ive cried and i worry that now hes got this label for life and thiers no more " he might grow out of it " . 

Im happy as i no we can reach out for support now with this im scared because qe have faught this battle on our own for so long to let new people in

 I dont really no where we go from here either  he gave me a number for a course n said he qould get intouch with certain people to get intouch with me but nothin spercific as such then said he would be discharging him as his only job was to diagnose him.   

Where do we go from here ?what happens. I heard every autistic child should have a keyworker is this correct . If so from where and what do they do ? Im so confussed right now if im honest im finding it hard to process. Weve known for a while but having it in black and white is hard to see. I love him god i love him so much and wouldnt change him for the world i gyess im after advise to see what others did after diagnosis. Will it help or isit allways going to be a battle 

Parents
  • Hey

    You may find the following leaflet which you can download from our website useful:
    www.autism.org.uk/.../whats-next-information-campaign.aspx

    Post-diagnosis can be a very nervous time for any parent, but we're here to help you. In this link you can find information on the effects on your family, getting some practical support as well as telling your child about their diagnosis.
    If you have any other questions, or wanted some more advice, you may like to contact our Autism Helpline team. They can provide you with information and advice on your issue. You can call them on 0808 800 4104 (Monday to Thursday 10am to 4pm, Friday 9am to 3pm.

    Take care, 

    SteveMod 

Reply
  • Hey

    You may find the following leaflet which you can download from our website useful:
    www.autism.org.uk/.../whats-next-information-campaign.aspx

    Post-diagnosis can be a very nervous time for any parent, but we're here to help you. In this link you can find information on the effects on your family, getting some practical support as well as telling your child about their diagnosis.
    If you have any other questions, or wanted some more advice, you may like to contact our Autism Helpline team. They can provide you with information and advice on your issue. You can call them on 0808 800 4104 (Monday to Thursday 10am to 4pm, Friday 9am to 3pm.

    Take care, 

    SteveMod 

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