Not sure why I'm posting, just feel so low and tired today.
We noticed at 2.5 that our daughter was showing signs of autism as well as sleep problems hv advised us to wait awhile before pursuing anything as daughter had complications after birth that we were warned could cause delays in development.
At 3.5 took her to gp about sleep and repetitive behaviour and diet, he laughed at me but referred her to paediatrician who agreed she was showing signs he asked gp to refer her to camhs so I waited gp it turns out never referred her.
At 6, school nurse got involved and got camhs to come out and see her they agree she needs assessment great! No they mess up referral and daughter is rejected due to the wording on her referral letter! School nurse stands by us sets up ehp gets us a support worker (didn't want) all to document everything to support re-referral.
Daughter is now 8 and still not sleeping she was making herself Ill (as well as me) tried gp again told they can't help. So I brought her melatonin gummies and it worked for the first time in years she was sleeping and happier in herself but school nurse found out demanded I stop and take daughter back to gp as it's best from doctor, so I do this and guess what they won't help and don't want her having them so we are all back to no sleep constant meltdowns. It just seems ludicrous that I am the bad one for doing something that actually helped my daughter and they do nothing! Apparently sleep deprivation is better for her!
Sorry pointless rant I know just feel so lost
Sounds like your really going through it at the moment.
I went through this when my daughter was 8 and I thought a lot of it was hormonal as well as the autism.
Haven't used those gummies but the reviews seem positive
I was saying on another thread that I've started giving her just a shop brought multivitamin and a Nordic dha liquid gummy capsule and that seems to have really helped her.
I think we all need to start getting a bit political and standing up for ourselves.
If the help isn't there ..then who wouldn't take it on themselves .to do the best they can?
Thanks for the reply, as I said just feeling really let down today,
I have tried omega oils before and she won't swallow them . We do have her on multi vitamins as her diet is not good. So far the gummies were all that worked. Oh well at least I had a few days sleep!
Thanks again for the reply it's just good to get it off my chest x
Don't forget that the Samaritans are there for you.
Look after yoursel as well.