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Mum of J

Hi its the first time i have come on line my son(10 years) was diagnosed a year ago has ASD not Aspergers but was told he was nearist their on spectrum for when looking up info by doctor. He struggles with writing i have noticed this is not helped by the fact he continually reads through all he has writen often ever few words, and often writes over words again. He was recently turned down for staitmenting as he is very bright but i am worried as he goes up to senior school in a year and he will struggle moving from class room to class room. The class he is in at the moment has a high level of statmented children so although they see him as not needing support he has had it since reception. I was also told on a corse i went on we should be claming DLA but i can noy see how has he has no physical needs other than any other child of his age. any advice would be very welcome Thank you.

Parents

  • I'd try for DLA as well. See if your local authority have a "quids for special kids" project - this may just be Devon's name for it, but i think its national supported by the CAB. A lady came out and filled in the form with us. I also thought i wouldn't be eligiable as he has no obvious physical difficulties, but the more you talk though what you do for your ASC child the more you realise you've just got used to living like that and other parents of the same age child dont have to do - constant vigilance when out, bathing, personal care, sleep settling etc (mines 9 now and we still have to do all this). We haven't heard whether we'll be awarded it yet but the CAB lady thought we should at least get the lower level. I also felt uncomfortable about taking benefits when we are luckily a financially secure family. But she recommended using it for an enabler to support him at cubs and football so that he can continue to attend mainstream activities, giving us a break as well. Or investing it for when he is a teenager and his peers are getting saturday jobs but he wont be likely to cope with a saturday job (he's be a dreadful babysitter, shop assistant, bar man or waiter - doesn't care what anyone else wants!). Also with all proposed benefit cuts its being advices to apply now before they start cutting child DLA. 

    As for a statement, it doesn't matter now bright he is, if he is struggling to cope with school and joining in with mainstream lessons, he needs help. We were advised to keep a daily log of feedback from his class teacher, so that you and the school can have a realistic picture of his participation. And yes at 10 he needs to be in the system before secondary school. Good luck, let battle begin!

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  • I'd try for DLA as well. See if your local authority have a "quids for special kids" project - this may just be Devon's name for it, but i think its national supported by the CAB. A lady came out and filled in the form with us. I also thought i wouldn't be eligiable as he has no obvious physical difficulties, but the more you talk though what you do for your ASC child the more you realise you've just got used to living like that and other parents of the same age child dont have to do - constant vigilance when out, bathing, personal care, sleep settling etc (mines 9 now and we still have to do all this). We haven't heard whether we'll be awarded it yet but the CAB lady thought we should at least get the lower level. I also felt uncomfortable about taking benefits when we are luckily a financially secure family. But she recommended using it for an enabler to support him at cubs and football so that he can continue to attend mainstream activities, giving us a break as well. Or investing it for when he is a teenager and his peers are getting saturday jobs but he wont be likely to cope with a saturday job (he's be a dreadful babysitter, shop assistant, bar man or waiter - doesn't care what anyone else wants!). Also with all proposed benefit cuts its being advices to apply now before they start cutting child DLA. 

    As for a statement, it doesn't matter now bright he is, if he is struggling to cope with school and joining in with mainstream lessons, he needs help. We were advised to keep a daily log of feedback from his class teacher, so that you and the school can have a realistic picture of his participation. And yes at 10 he needs to be in the system before secondary school. Good luck, let battle begin!

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