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starting an assesment for my 11 yr old son

momoftwo

So in my previous thread, I wrote we were unsure whether to go ahead and start an assesment process....but things have not changed, and we have been reading a lot about Autism, and think perhaps there are things that fit...

So when I spoke to my sons contact person last week from CAMHS and told her how things were, and she herself suggested starting the assesment process, i agreed that perhaps that was the thing to do. 

We are now booked in for a meeting with camhs to do a developmental history screen and his secondary school have to answer some questionnaire, then it will go to a panel to discuss if the will take the process further.

NOw, the thing is, i talk to learning support coordinator and apart from the fact that he is in the learning centre every break and lunchtime (his own choice), she says he seems happy and socialble with the kids in there ( they play a lot of board games), and his teachers dont have any issues with him ( which we know,  as in school he has always behaved perfectly and is quite shy - it's at home the problems really show)....

and i have been sent the developmental history screening questionnaire and i don't remember much from him being young, and to be honest most things have seemed pretty normal in terms of his communication which most of the questions seem to be on, so in that nothing will come up? 

therefore thinking now, that maybe this isnt at all where we should be going...as there is no way he forfills perhaps whats needs to be forfilled to go to the next step of screening anyways?

( Despite him having really no friends his own age and struggling socially in school for some years, stimming a lot at home, tics, struggling at home arguing with us, having a  huge sense of what is fair and not fair especailly alongside his older brother of 2.4 yrs older,  needing a lot of structure, warning, times for everything, his obsession with different things, huge anxiety meltdowns, not coping with too much stimulation very well, likes to sit alone on the sofa - never cuddling up to anyone, only wants hugs if he gives them and then its  very tight squeeze, always has been difficult to put to bed - now needs timers to time how long he takes to get ready to get him to bed, needs one-to-one time in order to calm down and be able to fall asleep..and there are more!! ) 

Parents

  • Hello,I have gone through the process of 'Developmental History' in relation to my daughter-she has very recently received a diagnosis of ASD.Please do not jump ahead and worry that the 'developmental history' process will not lead to the next step in assessment-ADOS/Autistic Diagnositic Observation Schedule-the one to one session between CAHMS and your son.In my daughter's case, there was little/no tangible indication of ASD when she was at primary school and at home. However, my daughter started to show signs of ASD when she transitioned to Secondary.The fact that CAHMS have suggested that it is time to screen for ASD is positive.I can identify with the feeling/suspicion that you have regarding the  developmental history questionnaire -I remember being concerned that this part of the assessment would result in my daughter not being it forward for the ADOS.I would urge you (based on my experience and having felt the same way about the developmental history questionnaire) to go ahead and complete and submit it-worst case scenario would be that you could appeal if you disagree with the outcome but I very much doubt that this will happen. I'ld predict that your son will undergo the ADOS part of the assessment ,all that you have described in terms of his current behaviour can be considered very obvious signs of ASD.

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  • Hello,I have gone through the process of 'Developmental History' in relation to my daughter-she has very recently received a diagnosis of ASD.Please do not jump ahead and worry that the 'developmental history' process will not lead to the next step in assessment-ADOS/Autistic Diagnositic Observation Schedule-the one to one session between CAHMS and your son.In my daughter's case, there was little/no tangible indication of ASD when she was at primary school and at home. However, my daughter started to show signs of ASD when she transitioned to Secondary.The fact that CAHMS have suggested that it is time to screen for ASD is positive.I can identify with the feeling/suspicion that you have regarding the  developmental history questionnaire -I remember being concerned that this part of the assessment would result in my daughter not being it forward for the ADOS.I would urge you (based on my experience and having felt the same way about the developmental history questionnaire) to go ahead and complete and submit it-worst case scenario would be that you could appeal if you disagree with the outcome but I very much doubt that this will happen. I'ld predict that your son will undergo the ADOS part of the assessment ,all that you have described in terms of his current behaviour can be considered very obvious signs of ASD.

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