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Could my 9yr old be Autistic

NAS49615

Hi, I'm wondering if anyone could give some advice or suggestions. My daughter is 9 and has always been developmentally delayed, she didn't walk till she was 23months, never rolled over or crawled. She was a late talker, and was referred to Speech & Language when she was 3, discharged at 7 (I think). She was referred to Physio's also at 3 as she 'walked on tiptoes' but was discharged quickly. Educationally she has always been delayed and at school in both maths and literacy is working 2 years behind. This seems to have become more apparent this year as seems to have made little/no progress last academic year, and the new SENCo seems to be taking notice of her. The SENCo is applying for an EHCP for her and suggested considering alternative provision, which is a bit of a shock to us. 

The SENCo believes something is underlying but hasn't mentioned Autism, but it is something that has been mentioned in the past by my Mum and I've considered. There's other little things such as; she bites her fingers till she bleeds, she struggles in a large social group and tends to sit on the outside and not get involved, she struggles with trying something new which we've always considered to be a confidence thing. She quite often gets over emotional very quickly and will cry before being able to fully explain something. 

I don't know if I am looking for something thats not there, I don't know if I am way of the mark but I feel there is something. 

If you have anything that may help, your own experiences etc that would be great. Also what is the best way to get an assessment? school or GP? 

Thanks in advance 

  • in reply to NAS49617

    I can not speak for all schools and I'm not a professional but the primary school my daughter attends do offer additional help without diagnosis or statement of needs, I would suggest making an appointment with your school senco taking along any documents you have regarding his assessment and explain you are still awaiting the final diagnosis, they may put something in place until diagnosis when a formal plan can be put in place.

    As I said we are still trying to get my daughter assessed, and the school and school nursing team have been fantastic, they took the time to talk to me to find out what overloads my daughter and if they could they made adjustments like allowing her to use different toilets and not having to go in to crowded areas if she felt it was to much. Speak to the school and ask not all schools are the same but you definitely need to make the senco aware of your sons needs

  • My 6 year old is being assessed for Autism Spectrum, Even though we are certain that he is we still need to wait for the diagnosis. My question is that are even 5hough the school are aware of this and of his learning difficulties are they obliged to helped him and put special needs care in place for him or can they refuse until they have a statement with his diagnosis. I am really struggling as the school have provided no help whatsoever for him, he is now Year 1 and is clearly struggling with the work. So when he has sensory overload they treat him like he is being naughty and don’t let him go out to play until he has finished his work. This really had me fuming.  There are a lot of things I have to say to 5e school but what I want to know...anyone from experience or any professionals do I need the statement before they help him?

  • Talk to your gp. Or if your senco is involved ask for the school nursing team to come and see her they can gauge whether or not she could benefit from assessment and refer if necessary. 

    We were ignored by the gp but school nurse is brilliant, our daughter used to pick at her finger nails until they bled then she would start on her toes, as she got older when her teeth got wobbly she would literally rip them out as she hated the feeling