I don’t feel believed

My 7 year old daughter has just had her referral accepted and we are about to start the process of getting a potential diagnosis.

While we are waiting things at home are getting pretty bad, almost daily meltdowns which are lasting longer and longer. She gets very stressed and anxious and struggles to verbalise it. The problem is the school don’t see any of this, she hides it all at school and then it comes out at home. I had a meeting with her teacher today to see if we could come up with a way for my daughter to express how she’s feeling at school because often something happens at school and she holds it in all day. The teacher outright said she doesn’t believe she’s autistic and she doesn’t see a problem (she expressed as much on the forms that she had to fill in for the referral). 

I feel like the school have me down as some crazed, neurotic mother who is making it up or just a rubbish parent. I left that meeting feeing crap and not knowing how to go forward and deal with this. I can’t understand how they can outright dismiss this as a potential problem. 

Parents
  • Hi NAS39316

    In addition to the great community advice, I'd like to post links for our Educations Rights Service and the Autism Helpline, just in case they are useful.

    The following article contains a lot of helpful information about education for a child with an autism, this includes information regarding getting extra support for your child in their education setting - http://www.autism.org.uk/about/in-education.aspx   

    You can search for schools that cater for children with an autism spectrum disorder on our Autism Services Directory - www.autism.org.uk/directory.aspx

    It can help to pass on information specifically for education professionals about autism spectrum disorders. The following link contains information written for education professionals - http://www.autism.org.uk/professionals/teachers.aspx

    You may want to contact our Education Rights Service who provides information, support and advice on educational provision and entitlements. Please see the following link for further information - http://www.autism.org.uk/services/helplines/education-rights.aspx

    You may like to contact our Autism Helpline team who can provide you with information and advice . You can contact the team via telephone on 0808 800 4104 (Monday to Thursday 10am to 4pm, Friday 9am to 3pm). Please note that the Helpline is experiencing a high volume of calls and it may take a couple of attempts before you get through to speak to an advisor. Alternatively, should you prefer to send a message, you can do so via their webform:

    https://www.autism.org.uk/services/helplines/main/questions.aspx

    Hope this helps,

    Nicky-Mod

Reply
  • Hi NAS39316

    In addition to the great community advice, I'd like to post links for our Educations Rights Service and the Autism Helpline, just in case they are useful.

    The following article contains a lot of helpful information about education for a child with an autism, this includes information regarding getting extra support for your child in their education setting - http://www.autism.org.uk/about/in-education.aspx   

    You can search for schools that cater for children with an autism spectrum disorder on our Autism Services Directory - www.autism.org.uk/directory.aspx

    It can help to pass on information specifically for education professionals about autism spectrum disorders. The following link contains information written for education professionals - http://www.autism.org.uk/professionals/teachers.aspx

    You may want to contact our Education Rights Service who provides information, support and advice on educational provision and entitlements. Please see the following link for further information - http://www.autism.org.uk/services/helplines/education-rights.aspx

    You may like to contact our Autism Helpline team who can provide you with information and advice . You can contact the team via telephone on 0808 800 4104 (Monday to Thursday 10am to 4pm, Friday 9am to 3pm). Please note that the Helpline is experiencing a high volume of calls and it may take a couple of attempts before you get through to speak to an advisor. Alternatively, should you prefer to send a message, you can do so via their webform:

    https://www.autism.org.uk/services/helplines/main/questions.aspx

    Hope this helps,

    Nicky-Mod

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