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I don’t feel believed

NAS39316

My 7 year old daughter has just had her referral accepted and we are about to start the process of getting a potential diagnosis.

While we are waiting things at home are getting pretty bad, almost daily meltdowns which are lasting longer and longer. She gets very stressed and anxious and struggles to verbalise it. The problem is the school don’t see any of this, she hides it all at school and then it comes out at home. I had a meeting with her teacher today to see if we could come up with a way for my daughter to express how she’s feeling at school because often something happens at school and she holds it in all day. The teacher outright said she doesn’t believe she’s autistic and she doesn’t see a problem (she expressed as much on the forms that she had to fill in for the referral). 

I feel like the school have me down as some crazed, neurotic mother who is making it up or just a rubbish parent. I left that meeting feeing crap and not knowing how to go forward and deal with this. I can’t understand how they can outright dismiss this as a potential problem. 

Parents

  • I am sat here crying reading this because this is what is happening at our home my son is 3 nearly 4 and things are sooo bad atm. I've had 14 straight bad days with him. I've just been declined a cahms referral as they want him seen by the neuro team but now they want a school report and I know that the school won't help. I voiced my concern before he started school and they have been no help. Noah thrives in routine it's when things aren't in routine and everyday living. I just want someone to listen and tell us how to help him. I don't care about a label. Just help for us to help him. It breaks my heart watching him sooo distressed over everything. The colour on something or texture or if someone has touched it or what order it's in it terrible 

  • in reply to NAS39332

    It’s so hard isn’t it. My daughter has also had a really bad week, meltdowns every single day after school. I try so hard to be patient with her but she can’t explain why she’s upset and I feel like I can’t help. It’s exhausting 

  • in reply to NAS39316

    I just feel like we are sooo alone in all of this. Reading what everyone else is going through has actually made me feel abit better as I'm constantly questioning myself. When we have a good day I think to myself it's not that bad but when it's bad it's sooo bad. I just want Noah to be happy that's all I want and any way I can make him happy I will. 

    They tell you there is all this help out there and there isn't unless it's extremely bad all if the time or really visual no one will help 

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  • in reply to NAS39316

    I just feel like we are sooo alone in all of this. Reading what everyone else is going through has actually made me feel abit better as I'm constantly questioning myself. When we have a good day I think to myself it's not that bad but when it's bad it's sooo bad. I just want Noah to be happy that's all I want and any way I can make him happy I will. 

    They tell you there is all this help out there and there isn't unless it's extremely bad all if the time or really visual no one will help 

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