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Is it autism??

NAS39189

Hi,

its my first time here, and I could really use some good advice. I have three girls, a17 year old and 12 year old twins. One of my teins, Amber, is struggling a lot. We all are. For about 18 months now Amber is getting worse. It just started with crying, not knowing why but she was getting very upset. It kept going so I took her to the GP. We were referred to CAHMS it the may of 2016, we were eventually seen in April of 2017. I’m sure it’s not in every case but we are still dealing with them, but they aren’t much help at all. We have been assigned to a lady who is a mental health nurse. Amber is getting worse for example she screams, like she is being attacked, has horrendous panic attacks, she slaps and punches herself in the head repeatedly, she claws her face, pulls her hair. Ambers sleep pattern is all over, her eating is suffering, Amber and her twin sister Morgan aren’t identical but extremely similar, but now Morgan looks older,where Amber is smaller looks thinner, and just so fragile. Amber doesn’t liked to be touched, conferred, or hugged, it’s like hugging a stick. Sometimes she covers her ears and says everything is to loud, when it isn’t. She’s very very talented in drawing. When she finds she likes something she researched it to the point of being an expert. I’ve told CAHMS several times that I’m thinking she could be on the scale, but the mental health nurse says no, because she can hold a conversation and is very articulate!! Things are so stressful at home it’s not a nice place to be. Me and my husband are arguing all the time, her twin sister is really suffering because of it all. She gets very frightened when Amber has an episode, I don’t know if it’s a twin thing but they seem to feel a lot of what’s going ineith the other. Ambers missing a lot of school, but they are being brilliant.

Im so sorry it’s been a long message, and I’ve tried to include soy, but I feel strongly that something else is st play then just anxiety as the say, I’m just a frightened confused parent wanting answers. 

Many suggestions? Does it sound like it could be?? Or am I looking too far in yo things 

thanks 

catherine xxx

Parents

  • I know this is an old post but thanks for sharing your story and I do hope things have improved for your daughter since writing. There are many parents who are having to research themselves and though there are specialist doctors and nurses in place it can still be hard to find the right answers / solutions for your child as humans we are all very unique and different. What can work for one child doesn't generally always work for another. My son had difficulties falling off to sleep and we tried various medications both natural and pharma. We ended up keeping a food diary which I think was very important as we could track incidents also and see if there was any correlation or not as the case may be. Getting the right sleep patterns is hugely important as we found once his sleeping improved this was a major turning point as it had a positive affect on his days so that is always a great place to start. You could try a weighted blanket and this is a good article to read here https://www.snugcosy.co.uk/blogs/articles/autism. We had good success with our blanket and he still uses it today though he has improved greatly now as the years have passed by, the early start to teenage years being the hardest for us all though not too different to most teenagers at that stage in life and can be just hormonal though adding this to the mix with Autism, ADHD, Asperger's etc could be experienced at times like it was throwing petrol (hormone) on a fire (disorder) at times. I do hope things have improved for all of you and wish you well.

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  • I know this is an old post but thanks for sharing your story and I do hope things have improved for your daughter since writing. There are many parents who are having to research themselves and though there are specialist doctors and nurses in place it can still be hard to find the right answers / solutions for your child as humans we are all very unique and different. What can work for one child doesn't generally always work for another. My son had difficulties falling off to sleep and we tried various medications both natural and pharma. We ended up keeping a food diary which I think was very important as we could track incidents also and see if there was any correlation or not as the case may be. Getting the right sleep patterns is hugely important as we found once his sleeping improved this was a major turning point as it had a positive affect on his days so that is always a great place to start. You could try a weighted blanket and this is a good article to read here https://www.snugcosy.co.uk/blogs/articles/autism. We had good success with our blanket and he still uses it today though he has improved greatly now as the years have passed by, the early start to teenage years being the hardest for us all though not too different to most teenagers at that stage in life and can be just hormonal though adding this to the mix with Autism, ADHD, Asperger's etc could be experienced at times like it was throwing petrol (hormone) on a fire (disorder) at times. I do hope things have improved for all of you and wish you well.

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