• Replies 9 replies
  • Subscribers 71 subscribers
  • Views 3849 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

Is it autism??

NAS39189

Hi,

its my first time here, and I could really use some good advice. I have three girls, a17 year old and 12 year old twins. One of my teins, Amber, is struggling a lot. We all are. For about 18 months now Amber is getting worse. It just started with crying, not knowing why but she was getting very upset. It kept going so I took her to the GP. We were referred to CAHMS it the may of 2016, we were eventually seen in April of 2017. I’m sure it’s not in every case but we are still dealing with them, but they aren’t much help at all. We have been assigned to a lady who is a mental health nurse. Amber is getting worse for example she screams, like she is being attacked, has horrendous panic attacks, she slaps and punches herself in the head repeatedly, she claws her face, pulls her hair. Ambers sleep pattern is all over, her eating is suffering, Amber and her twin sister Morgan aren’t identical but extremely similar, but now Morgan looks older,where Amber is smaller looks thinner, and just so fragile. Amber doesn’t liked to be touched, conferred, or hugged, it’s like hugging a stick. Sometimes she covers her ears and says everything is to loud, when it isn’t. She’s very very talented in drawing. When she finds she likes something she researched it to the point of being an expert. I’ve told CAHMS several times that I’m thinking she could be on the scale, but the mental health nurse says no, because she can hold a conversation and is very articulate!! Things are so stressful at home it’s not a nice place to be. Me and my husband are arguing all the time, her twin sister is really suffering because of it all. She gets very frightened when Amber has an episode, I don’t know if it’s a twin thing but they seem to feel a lot of what’s going ineith the other. Ambers missing a lot of school, but they are being brilliant.

Im so sorry it’s been a long message, and I’ve tried to include soy, but I feel strongly that something else is st play then just anxiety as the say, I’m just a frightened confused parent wanting answers. 

Many suggestions? Does it sound like it could be?? Or am I looking too far in yo things 

thanks 

catherine xxx

Parents

  • Hi, NAS39189!
    Thanx for sharing your story! You seem to be a very caring parent and I hope your daughter gets better. My nephew is the same age as your girl and shares the same problems. It was hard for him to relax and he often didn't get enough sleep. As a result, he was tired and even more annoyed. Everything became a little better after they changed the usual nephew's blanket with a special one. They found it here     www.melacomfort.co.uk/.../how-to-find-the-best-weighted-blanket-for-autism almost a year ago and since then we can observe significant progress. The better nephew sleep, the better he feels the next day. The tricky thing is to calculate the correct weight of the blanket. For a blanket to give a therapeutic effect, it must weigh within 7-12 percent of the weight of a person. It should not be too light, then the blanket will be useless. At the same time, a person should be able to remove it easily. Of course, I could be wrong, so advise you to conduct your own research. One thing is sure, it's really a good bonus to the basic therapy.

Reply

  • Hi, NAS39189!
    Thanx for sharing your story! You seem to be a very caring parent and I hope your daughter gets better. My nephew is the same age as your girl and shares the same problems. It was hard for him to relax and he often didn't get enough sleep. As a result, he was tired and even more annoyed. Everything became a little better after they changed the usual nephew's blanket with a special one. They found it here     www.melacomfort.co.uk/.../how-to-find-the-best-weighted-blanket-for-autism almost a year ago and since then we can observe significant progress. The better nephew sleep, the better he feels the next day. The tricky thing is to calculate the correct weight of the blanket. For a blanket to give a therapeutic effect, it must weigh within 7-12 percent of the weight of a person. It should not be too light, then the blanket will be useless. At the same time, a person should be able to remove it easily. Of course, I could be wrong, so advise you to conduct your own research. One thing is sure, it's really a good bonus to the basic therapy.

Children
No Data