PLEASE - Son diagnosed autistic 14 now struggling re statement

My son was diagnosed autistic in May 12 aged 14. I pushed for this after many years of problems. He has never been picked up in school - - - long story and now we have so much ground to make up.

This is a very late diagnosis and his education to date has been nothing less than a torment and frustration to him.... now we know why. My son is below average in all subjects and considerably below in others - though he is intelligent and capable in other settings. Further my son refuses school and sometimes walks out. He is not badly behaved he is simply unable to manage. His experiences of education to date are poor, he recieves repeated negatiuve feedback, is often called lazy, manipulative and stubborn. 

My question is do I push for a statement? 

I have requested the SENCO at school refer my son for statement though I cannot help feeling she is being obstructive. She has written that staementing process is very different these days and school can meet most childrens needs within budget etc. She has questioned my son's diagnosis in both her emails, asking who did it, when etc. It is clear she thinks I have told lies???? I have no idea what the agenda is here...

Why do I want a statement:

Because my son is going into year 10 in Sept and only has 2 years of formal education left.

He has a great deal to make up and it is clear he has a range of difficulties thriving or making progress in his everyday school environment without more help. 

Although school have been helpful nothing seems joined up or focused. My sons low moral, underachievement etc are evidence that they are not aware of his specific needs & nor are there any specific targeted plans to help him. 

Maybe, just maybe, if my son has a thourough assessment and an education plan tailored to his needs + support then he might experience the joy of education that many of his peers enjoy. Maybe his new experiences will influence his future choices about further education and most importantly improve his life chances in the long run. 

I would love to know what other people think... Time is of the eccence and I have nobody objective with knowledge of this area to bounce off.

Any information is better than nothing

Thanks Thanks 

Parents
  • Hi Happy

    Reading your original post I could have been reading mine and my son's situation almost a year ago, our boys are even the same age and diagnosed at the same age.

    Your son does need a statement and he now has a diagnosis and needs support to ensure he has the education he deserves. I found out on Monday that we have been successful in the Scottish equivalent of a Statement and already things have changed for my son for the better as support has been put in place for him along with a reduced timetable and less subjects as that is all he can cope with at the moment. I have battled almost a year to get it but it was worth every tear I shed along the way!

    Don't be fobbed off by the school, ignore mention of budgets they are no concern to you, also your son can stay at school until he's 19 so don't worry about 'only having 2 years of formal education left'.

    I think the first thing you should do is contact the Education Rights Service here at NAS, the link is below:

    www.autism.org.uk/.../advocacy-for-education-service-in-england-and-wales.aspx

    It would also be worth you contacting the Parent Partnership, they are impartial from the LEA and are there to support parents who have children with SEN. Again there link is below:

    www.parentpartnership.org.uk/

    Stay strong and I wish you and your son the best of luck.

Reply
  • Hi Happy

    Reading your original post I could have been reading mine and my son's situation almost a year ago, our boys are even the same age and diagnosed at the same age.

    Your son does need a statement and he now has a diagnosis and needs support to ensure he has the education he deserves. I found out on Monday that we have been successful in the Scottish equivalent of a Statement and already things have changed for my son for the better as support has been put in place for him along with a reduced timetable and less subjects as that is all he can cope with at the moment. I have battled almost a year to get it but it was worth every tear I shed along the way!

    Don't be fobbed off by the school, ignore mention of budgets they are no concern to you, also your son can stay at school until he's 19 so don't worry about 'only having 2 years of formal education left'.

    I think the first thing you should do is contact the Education Rights Service here at NAS, the link is below:

    www.autism.org.uk/.../advocacy-for-education-service-in-england-and-wales.aspx

    It would also be worth you contacting the Parent Partnership, they are impartial from the LEA and are there to support parents who have children with SEN. Again there link is below:

    www.parentpartnership.org.uk/

    Stay strong and I wish you and your son the best of luck.

Children
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