Newly diagnosed son and scared parent

My 3 year old son has just been diagnosed with ASD. We completed a questionnaire with the paediatrician, they confirmed diagnosis and gave us some leaflets to read at home. Now I feel like I have been thrown into this world that I have little understanding about and worried about my sons future. I wasn’t able to ask the Dr any questions because they were running behind. I’m hoping to get some help/support from other people on here. 

My son has an expressive and receptive language delay. He is currently non verbal and will pull you to what he wants or bring it to you (the remote control if he wants the tv on ect) he can say and read numbers and letters and enjoys nursery rhymes. It can be difficult to get his attention and he can lash out if he doesnt want to do something (pinch and slap) he likes to engage with children but as his communication is limited he finds it difficult he also doesn’t understand the concept of sharing and his play skills are delayed. He doesn’t have any routine/food/sleep issues. 

for all the parents and carers out there with children with ASD does it get better? How will I know if he is going to be high or low functioning? He is on the waiting list for speech therapy, is there anything I can do to help him progress? 

I know everyone with ASD is different. It would just be good to hear some of your experiences and share any advice with me. 

I have spent the last couple of days crying and worrying my son will never develop. I have decided it’s pointless crying and being upset and I’m putting all my efforts into helping him. Any advice on where to go next would be really helpful! 

  • Hi, my 4 year old son was also diagnosised recently. My son uses some single words and learnt phrases but can not have a conversation. He also does not have issues with sleep or routine. He likes other kids and will attempt to join in with active play games but because of his language delays struggles to maintain interact with them. I am very lucky as he is a very gentle and happy child. 

    If I am honest I suspected my son had autism from before he was two but I couldn’t bring myself to accept. When we finally got a diagnosis to be honest I actually feel like I have gone into a further denial but at night when I am alone my fears about his future, what to expect, will he make friends, will he be able to talk etc came flooding back and I cry for hours. I don’t know what to do. We are currently in the process of getting an EHCP to get him into a specialist unit but again this scares me as I know in my heart it is what is best for him but I can’t help but feel sad about it at the same time. I feel guilty for feeling that way. My husband and I are really struggling coming to turns with the diagnosis 

    I also would love some advice from parents who have been through this before. 


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