Worried about diagnosis

Feeling very nervous here. We've received a draft report for our 13 year old daughter and were told she has SCD rather than ASD. We're convinced that she should've met some of the criteria that have been marked negative. We know she needs to meet each set ABC and D but does she need to meet each subset of those? We've been waiting over 4 years for an assessment but right now it really feels like limbo!

Parents

Heather - Mod over 7 years ago

Hi NAS35868,

I'm sorry you've had a difficult experience with the diagnosis process, you might find it useful to look at the NAS page on diagnostic criteria, it includes links on different autism profiles, misdiagnosis and how to complain:

http://www.autism.org.uk/about/diagnosis/criteria-changes.aspx

If you have any other questions, or wanted some advice, you may like to contact our Autism Helpline team. They can provide you with information and advice on your issue. You can call them on 0808 800 4104 (Monday to Thursday 10am to 4pm, Friday 9am to 3pm).Please note that the Helpline is experiencing a high volume of calls and it may take a couple of attempts before you get through to speak to an advisor.

Kind regards,

Heather - Mod
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Ayshigirl over 7 years ago in reply to Heather - Mod

Thanks Heather, I've had a read through and whilst some of it is starting to make sense it seems complicated. I'm still not clear whether my daughter needs to meet every subset of the different criteria or just some of them.
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) ( over 7 years ago in reply to Ayshigirl

I had to google SCD, upon doing that I found an article about it and how it is being used within the criteria more now.

And may I add a paper I came across that may shed some light on it potentially?

https://www.autismspeaks.org/blog/2014/01/31/social-communication-disorder-parents-seek-guidance

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5509825/

And something else that may give a potential for wrong diagnosis?

www.ncbi.nlm.nih.gov/.../

I am no expert but there seems to be a big problem in using Male diagnostic criteria when assessing females.

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) ( over 7 years ago in reply to Spotty Tortoise

Thank you spotty! I had never heard of it myself, my first google search came up with various hits and only one autism related, to do with deficiency in the Diet? I had to type “Autism and SCD to get a good hit.

The more research I do into autism and associated traits the more I worry! They are trying to blend all into one heading?! No doubt so they can stop help or benefit easier?

No more Aspergers? Now using SCD to cut down on ASD ,we all know that stimming or repetitive movements Are not seen in all autistic people!

same applies to having fixed narrow focus on specific interests,

Did you see the two links I posted about how a lot of females are misdiagnosed using Male orientated criteria?

hope you are ok?

Take care x()x()x()x()x
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) ( over 7 years ago in reply to Spotty Tortoise

Thank you spotty! I had never heard of it myself, my first google search came up with various hits and only one autism related, to do with deficiency in the Diet? I had to type “Autism and SCD to get a good hit.

The more research I do into autism and associated traits the more I worry! They are trying to blend all into one heading?! No doubt so they can stop help or benefit easier?

No more Aspergers? Now using SCD to cut down on ASD ,we all know that stimming or repetitive movements Are not seen in all autistic people!

same applies to having fixed narrow focus on specific interests,

Did you see the two links I posted about how a lot of females are misdiagnosed using Male orientated criteria?

hope you are ok?

Take care x()x()x()x()x
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