Ashamed of myself.

Hi, my 11 year old son has autism, I have never had a problem with his diagnosis, and have fought for all the help he deserves. However I met an old friend today, we have been friends for years, until we have our son and they had there 1st son. Thingswere ok until our son 's development became delayed at around 12months. I retracted from all toddler groups, and our friends, we eventually moved so the gap widened. In honesty I know it's because It hurts to see their neurotypical son talking and being very adult like, and my son standing looking into a corner talking to himself. In everyday life I'm fine everybody know's about his autism and he goes to a special school, who are wonderful. Today however I was back feeling sad about the obvious differences between my son and other kids of the same age.  He is the 2nd of 4 children and he is fabulous I wouldn't change him, so I don't understand why I feel like this when I see this particular boy?

Parents
  • Hello, I'm a newbie... 

    When my boy was 6 months old he started to shake his head a lot (mostly at night when he was tired)... I took him to his Health Visitor who assured me he was fine. I went back after his MMR injection because he by then had stopped talking, she did a quick examination (flashing a light in his eye and measured his head) she said he was fine. At 16 months I went to a lady I know whose son did the exact same thing and at 25 months started talking out of the blue, which reassured me a great deal.

    Finally I got to see a great Dr who also has children and she took me seriously and said she wanted to send him for the "full works" but my son produces a lot of wax and is awaiting an appointment to go to hospital for an ENT examinations to see if he has glue ear, only after all this has been done will he be assessed for autism

    So far I haven't told ANY friends or family. I have told strangers though and 2 friends who are social workers and careers to disabled children and adults. One of them keeps saying: "Stop being embarrassed and ashamed and just tell them". That's not the point. 

    The point is. I live far away from my family. I am English but grew up abroad and there is another reason... that being that my son was very advanced, more than all the babies around me at the time. ie crawling at 5 months, saying words like: baby, momma, dadda, water, no, good morning at 6 months, by 7 months he was crawling up AND down the stairs etc etc so I was unfortunately one of those mothers who would share my sons millstones and this ended up upsetting other friends who have babies... mainly my husband's friends and a competition about whose baby was doing what first started. Now (2yrs on) if I tell them that my son has stopped talking completely, isn't ready to be potty trained, won't point or come every time I call him I  am dreading the backlash. I know that I'm being ridiculous but that is just how I feel. 

    Being brought abroad I learnt different languages, my husband is a foreigner and has  Aspersers (I have only just discovered this), he has a very high IQ and we would talk to our son in 2 sometimes 3 languages and would talk about what he would do when he was older, which language he would learn first etc etc and now we are thinking: "Will he eat today?", "will he be bullied for being different?", "will he get married and have meaningful relationships?". Our lives have tipped upside down. 

    I would like to hear from other parents... how did you tell your parents, family and friends? Did you keep this from some people? What responses did you get?

     

    These are my sons symptoms:

    Spinning with his eyes to the side of his eye socket in the direction that he is spinning in.

    Jumping when seeing something he likes (milk, TV, cookies, cars).

    Not coming when I call him 90% of the time.

    Lining his cars in a line over and over again.

    Doesn't have a big appetite.

    Won't point

    Will bring me what he wants instead of asking

    Won't wave bye-bye anymore

     

    GOOD POINTS:

    Smiles and laughs A LOT

    Will come to me when I tell him off (as if to say sorry)

    Will put his cheek on my mouth and pull my face towards him for a kiss when he wants one.

    Loves cuddles

    Loves books

    Is VERY strong

    Knows what he wants and goes and gets it and solves problems to get what he wants... (will get a box to climb to the shelf)

    Any thoughts on this? Sorry about it being long ( I had a lot to get off my chest)

Reply
  • Hello, I'm a newbie... 

    When my boy was 6 months old he started to shake his head a lot (mostly at night when he was tired)... I took him to his Health Visitor who assured me he was fine. I went back after his MMR injection because he by then had stopped talking, she did a quick examination (flashing a light in his eye and measured his head) she said he was fine. At 16 months I went to a lady I know whose son did the exact same thing and at 25 months started talking out of the blue, which reassured me a great deal.

    Finally I got to see a great Dr who also has children and she took me seriously and said she wanted to send him for the "full works" but my son produces a lot of wax and is awaiting an appointment to go to hospital for an ENT examinations to see if he has glue ear, only after all this has been done will he be assessed for autism

    So far I haven't told ANY friends or family. I have told strangers though and 2 friends who are social workers and careers to disabled children and adults. One of them keeps saying: "Stop being embarrassed and ashamed and just tell them". That's not the point. 

    The point is. I live far away from my family. I am English but grew up abroad and there is another reason... that being that my son was very advanced, more than all the babies around me at the time. ie crawling at 5 months, saying words like: baby, momma, dadda, water, no, good morning at 6 months, by 7 months he was crawling up AND down the stairs etc etc so I was unfortunately one of those mothers who would share my sons millstones and this ended up upsetting other friends who have babies... mainly my husband's friends and a competition about whose baby was doing what first started. Now (2yrs on) if I tell them that my son has stopped talking completely, isn't ready to be potty trained, won't point or come every time I call him I  am dreading the backlash. I know that I'm being ridiculous but that is just how I feel. 

    Being brought abroad I learnt different languages, my husband is a foreigner and has  Aspersers (I have only just discovered this), he has a very high IQ and we would talk to our son in 2 sometimes 3 languages and would talk about what he would do when he was older, which language he would learn first etc etc and now we are thinking: "Will he eat today?", "will he be bullied for being different?", "will he get married and have meaningful relationships?". Our lives have tipped upside down. 

    I would like to hear from other parents... how did you tell your parents, family and friends? Did you keep this from some people? What responses did you get?

     

    These are my sons symptoms:

    Spinning with his eyes to the side of his eye socket in the direction that he is spinning in.

    Jumping when seeing something he likes (milk, TV, cookies, cars).

    Not coming when I call him 90% of the time.

    Lining his cars in a line over and over again.

    Doesn't have a big appetite.

    Won't point

    Will bring me what he wants instead of asking

    Won't wave bye-bye anymore

     

    GOOD POINTS:

    Smiles and laughs A LOT

    Will come to me when I tell him off (as if to say sorry)

    Will put his cheek on my mouth and pull my face towards him for a kiss when he wants one.

    Loves cuddles

    Loves books

    Is VERY strong

    Knows what he wants and goes and gets it and solves problems to get what he wants... (will get a box to climb to the shelf)

    Any thoughts on this? Sorry about it being long ( I had a lot to get off my chest)

Children
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