I don't know what to do - new

Hello, My five year old son hasn't been diagnosed with ASD (yet!) but definitely appears to have a number of traits (if that's the right word). He has cerebral palsy (unable to walk independently), no speech (uses Makaton and just started using PECS). He has a number of sensory issues and it is these which are driving me to distraction.

He bounces on his knees, flaps his arms, turns/rubs pages of books/magazines etc - this could go on for a LONG time (hours, I suspect) if I don't remove him from the situation/engage him in a.n.other activity. The bouncing and flapping pretty much continues throughout. There doesn't seem to be a pattern in regards to triggers - quiet/noisy, dark/bright etc.  Historically he responded well to the use of a weighted blanket, ankle weights, body brushing/massage etc but nothing seems to work anymore. I hate seeing him like this - though he seems happy enough in himself. Nothing seems to engage him really - it's as if he's so busy being 'busy' that nothing else stands a chance.

Firstly, I realise it is MY problem but welcome any advice as to how I can learn to either help my son and/or learn how to manage my 'irritations'. I love him to pieces but can't watch him simply 'stim' (assuming this is what's going on) for every waking minute of the day. It's breaking my heart :-(

Parents
  • DayDreamer said:
    Nothing seems to engage him really - it's as if he's so busy being 'busy' that nothing else stands a chance.

    So why not just let him be 'busy'?!

    I love him to pieces but can't watch him simply 'stim' (assuming this is what's going on) for every waking minute of the day. It's breaking my heart Frown

    I believe so called 'stimming' can be a response to distress of some kind - see if you can figure out what that might be - are there times when he never 'stims'? are there environments in which he never 'stims'? what commonalities are there in those environments and/or occasions? likewise for when he does 'stim' - is there some situation/environment/condition that seems to trigger it?

Reply
  • DayDreamer said:
    Nothing seems to engage him really - it's as if he's so busy being 'busy' that nothing else stands a chance.

    So why not just let him be 'busy'?!

    I love him to pieces but can't watch him simply 'stim' (assuming this is what's going on) for every waking minute of the day. It's breaking my heart Frown

    I believe so called 'stimming' can be a response to distress of some kind - see if you can figure out what that might be - are there times when he never 'stims'? are there environments in which he never 'stims'? what commonalities are there in those environments and/or occasions? likewise for when he does 'stim' - is there some situation/environment/condition that seems to trigger it?

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