newbee looking for some advice...

my lovely boy is turning 4 in august, since he was born ive known something wasnt quite right. I had his eyes tested, his hearing, i spoke to countless gps and nothing - they told me until he was the age he is now, no one would assess him. I signed him up for a nursery in January, it didnt go well (although it started well) and after 3 days i had to tell them he wasnt going back. He has lots of autistic tendancies such as his obsessions, routines, facial expressions, not responding to his name being called, no sense of danger, no understanding of being good or naughty, he doesnt understand children are different ages and treats them all the same - he thinks he can hold their hands and stroke their hair like his baby cousin, his speech isnt fantastic and he uses his hands through conversations to 'sign' what hes talking about, he becomes extrememly upset if things arent done correctly, he has sensory issues with his hearing, sight, taste and touch. he loves being spun around, is constantly on the go from 5am til he collapses at 6pm. He doesnt sleep well, wont toilet train and is very funny with people and socialising. My sister was statemented with aspbergers last year aged 25 (my mums being trying to have her statemented since she was 2) and my cousin also has autism (shes about 11) I have been reffered to the peads, and have a 6 week course starting which focuses on behaviour and speech (im told its a stand in while i await the assessment with peads which can take upto 4 months before we get an appointment) ive read and spoke to lots of different people about their experiences, being a complete doh i thought it would only take a few months to see everyone, but i now know it can take years! i feel sooo sorry for my son, i feel like im constantly shouting at him because he doesnt listen, and is constantly doing everything he shouldnt be, i dont know if im heading completely down the wrong track, although im 99% sure im not. I just feel so bad for him, i dont know how to help him or where to take him to. I know no one can give me a straight answer, just looking for others to talk to with similar experiences xx

Parents
  • Hi Nikynoodle, After 3 years we have finally received a diagnosis for our 7 1/2 yr old son. Since he began school is has been obvious to us there were issues that needed help but we have had to fight our way through every person within the system. It is a matter of being persistent and keeping your Childs well being at the forefront of everything you do. My husband and I are now feeling so guilty as we were given incorrect advise on how to deal with our son due to incorrect diagnosis so we now have lots of reading and planning to ensure we an manage his ASD correctly. Stay strong and know there are people gon through the same thing as you. I wish we had accessed these forums when we started this process as you feel so alone going through the system. Keepi in touch you have an ear from me should you need one. Fieryphoenix
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  • Hi Nikynoodle, After 3 years we have finally received a diagnosis for our 7 1/2 yr old son. Since he began school is has been obvious to us there were issues that needed help but we have had to fight our way through every person within the system. It is a matter of being persistent and keeping your Childs well being at the forefront of everything you do. My husband and I are now feeling so guilty as we were given incorrect advise on how to deal with our son due to incorrect diagnosis so we now have lots of reading and planning to ensure we an manage his ASD correctly. Stay strong and know there are people gon through the same thing as you. I wish we had accessed these forums when we started this process as you feel so alone going through the system. Keepi in touch you have an ear from me should you need one. Fieryphoenix
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