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newbee looking for some advice...

Nikkinoodles29

my lovely boy is turning 4 in august, since he was born ive known something wasnt quite right. I had his eyes tested, his hearing, i spoke to countless gps and nothing - they told me until he was the age he is now, no one would assess him. I signed him up for a nursery in January, it didnt go well (although it started well) and after 3 days i had to tell them he wasnt going back. He has lots of autistic tendancies such as his obsessions, routines, facial expressions, not responding to his name being called, no sense of danger, no understanding of being good or naughty, he doesnt understand children are different ages and treats them all the same - he thinks he can hold their hands and stroke their hair like his baby cousin, his speech isnt fantastic and he uses his hands through conversations to 'sign' what hes talking about, he becomes extrememly upset if things arent done correctly, he has sensory issues with his hearing, sight, taste and touch. he loves being spun around, is constantly on the go from 5am til he collapses at 6pm. He doesnt sleep well, wont toilet train and is very funny with people and socialising. My sister was statemented with aspbergers last year aged 25 (my mums being trying to have her statemented since she was 2) and my cousin also has autism (shes about 11) I have been reffered to the peads, and have a 6 week course starting which focuses on behaviour and speech (im told its a stand in while i await the assessment with peads which can take upto 4 months before we get an appointment) ive read and spoke to lots of different people about their experiences, being a complete doh i thought it would only take a few months to see everyone, but i now know it can take years! i feel sooo sorry for my son, i feel like im constantly shouting at him because he doesnt listen, and is constantly doing everything he shouldnt be, i dont know if im heading completely down the wrong track, although im 99% sure im not. I just feel so bad for him, i dont know how to help him or where to take him to. I know no one can give me a straight answer, just looking for others to talk to with similar experiences xx

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  • Hi Nikkinoodle29

    I'm new to this too , I really feel for you, it's difficult enough having young kids ,as wonderful as they are, let alone when there are so many questions wanting to be answered and there is no  real support. It must feel like an uphill climb especially after your mother's experience trying to get your sister diagnosed .

    My girl's 13 but I knew something was wrong when she was ten months old and couldn't roll over or sit up. *** feeding was a nightmare because she couldn't stand being held, I used to lean over her when she was sleeping to *** feed and if she wasn't aware of me she used to feed perfectly. She began walking at two and talking at four, that is combining two or three words. At nursery she would stand in the corner and scratch her face, the teachers would ring me to take her home because she was so distressed.  The gps continually repeated it was late development nothing to worry about. She developed obsessions with knives , spiders, mirages in roads, ordering all her pencils, counting, lining things up and standing on the edges of things, windows , roofs no fear of danger at all, she would run at moving cars, very scary.

    She has never been diagnosed, we live in a country where it's almost impossible, I so regret not pushing harder because in adolescence things are very tricky.

    Don't give up, it's worth it.

     Best wishes for you and your boy

    Kezercorn  

     

     

Reply

  • Hi Nikkinoodle29

    I'm new to this too , I really feel for you, it's difficult enough having young kids ,as wonderful as they are, let alone when there are so many questions wanting to be answered and there is no  real support. It must feel like an uphill climb especially after your mother's experience trying to get your sister diagnosed .

    My girl's 13 but I knew something was wrong when she was ten months old and couldn't roll over or sit up. *** feeding was a nightmare because she couldn't stand being held, I used to lean over her when she was sleeping to *** feed and if she wasn't aware of me she used to feed perfectly. She began walking at two and talking at four, that is combining two or three words. At nursery she would stand in the corner and scratch her face, the teachers would ring me to take her home because she was so distressed.  The gps continually repeated it was late development nothing to worry about. She developed obsessions with knives , spiders, mirages in roads, ordering all her pencils, counting, lining things up and standing on the edges of things, windows , roofs no fear of danger at all, she would run at moving cars, very scary.

    She has never been diagnosed, we live in a country where it's almost impossible, I so regret not pushing harder because in adolescence things are very tricky.

    Don't give up, it's worth it.

     Best wishes for you and your boy

    Kezercorn  

     

     

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