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Setting up a drop in for adults who are on the spectrum

paulaobrien

Hi

I hope I am writing this in the correct place.

I would like people to comment on what they would like a drop in to offer?

For example what activites, information and other resouces would be beneficial?

I realise this is rather an open question but would appreciate your input.

Many Thanks

PaulaSmile

  • I know exactly how you feel Muckworm.

    I have Asperger's, and spend much of my time alone, lonely, and depressed. I too have a great Mum (and Dad, and Sister) but they're over 100miles away (and my parent are now both retired, and I too know that someday they will no longer be around to help me, and my Sister has a family of her own).

    I have tried attending a couple of local social groups - one is for people over 18 anywhere on the spectrum, the other is mainly for recently diagnosed adults, like myself - the first I find utterly depressing, and even more stressfull than a group of NTs! The second is much better, but both groups only meet once a month and neither has led to anything even remotely like any kind of social relationship beyond the group meetings.

    I too have found there seems to be lots of support for children, and carers, and virtually nothing for adults. Well, unless you also have a learning disability (which I don't).

    So, to address the OP's question: I would simply like somewhere to go, where I know I will be understood, where there is likely to be other people like me, and for that to be available not monthly, or weekly, but daily, because I can't just turn off my Asperger's for most of the week/month and switch it back on when there's a group to go to - I have to live with it every day.

  • I hope I've understood this right, forgive me if I haven't but I often get stuff wrong.

    In my area there is a lot of support for youngster on the spectrum and their carers but nothing for adults.

    I am an adult with HFA and would like somewhere to go where I can meet other people on the spectrum and maybe not on it too but who have some understanding of us. I have tried to join various social groups but always get excluded because 'I'm different' and my worse experiences are at the hands of churches.

    Such places could offer help with living support as well but for me I want a friend, someone to go out with sometimes who accepts me and doesn't judge me or try and change me to suit themselves.

    I have a great Mum but that's all, I don't have anyone else in my life and I know one day she will die and I worry because I know then I'll just be on my own and it feels lonely sometimes.

     

    I don't know if that helps - but that's what I would want from a drop in for ASD's.

  • Thank you for your response.

    This group will be for adults who are on the spectrum.

    I appreciate your input.

  • It would be nice to know if there are groups in the area for adults with ASD - not just groups for carers of people with ASD, support with housing, support with working / getting back into work, educational support, benefit information, etc.