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coping at university

rubyruby

My 18 year old daughter has recently been diagnosed with AS and is about to take A levels and has applied to go to uni. Although the diagnosis was from a psychiatrist he referred her on to a psychologist for assessment, but she wont get an appt for this for a year as they are so busy, which will be too late. I worry about her being able to cope with day to day living as she is not good at planning or thinking about what time it is etc. Can anyone give me any advice please?

Parents

  • I'm older (41), a post-grad and recently diagnosed but my university is willing to put an action plan together if you can show them strong suspicions of ASD before you have the rubber-stamped diagnosis as they know there can be a long wait.  If you're dr is supportive a letter from them would do it.

    If you're looking at universities find out how comprehensive their disability support is and what they offer.  Mine has mentoring, study coaching, help with planning, software, etc as well as the extra time and quiet rooms for exams.

    My supervisors have been great, interested and supportive but not particularly knowledgable but this is something that can be got over as they're keen to know more and how they can help.

    As an ASD person it's nice to be in an academic environment where ASDs are around and you can feel quite normal.  :-)

    A young male family member of mine (undiagnosed but obvious ASD tendencies) went to university and lived in halls and despite a few bumps (having to learn or have help with washing clothes, washing self and the occasional 'what's the point?' moments) he coped really well with it and got a lot out of being away from home.

    He was at a university that was only an hour and a half away and his parents were able to go up as and when required to pick him and his washing up.  Despite not being sociable he made a couple of friends and was welcome as a non-drinker on nights out....the nominated responsible adult. ;-)

    I would suggest:
    * checking out the disability services of prospective unis on line and when you visit,
    *consider somewhere local enough for far enough away to be independent,
    *the course leader/tutors experience and willingness to learn about ASD and how they can help avoid problems.

    Good luck with it all,
    Lulu :-)

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  • I'm older (41), a post-grad and recently diagnosed but my university is willing to put an action plan together if you can show them strong suspicions of ASD before you have the rubber-stamped diagnosis as they know there can be a long wait.  If you're dr is supportive a letter from them would do it.

    If you're looking at universities find out how comprehensive their disability support is and what they offer.  Mine has mentoring, study coaching, help with planning, software, etc as well as the extra time and quiet rooms for exams.

    My supervisors have been great, interested and supportive but not particularly knowledgable but this is something that can be got over as they're keen to know more and how they can help.

    As an ASD person it's nice to be in an academic environment where ASDs are around and you can feel quite normal.  :-)

    A young male family member of mine (undiagnosed but obvious ASD tendencies) went to university and lived in halls and despite a few bumps (having to learn or have help with washing clothes, washing self and the occasional 'what's the point?' moments) he coped really well with it and got a lot out of being away from home.

    He was at a university that was only an hour and a half away and his parents were able to go up as and when required to pick him and his washing up.  Despite not being sociable he made a couple of friends and was welcome as a non-drinker on nights out....the nominated responsible adult. ;-)

    I would suggest:
    * checking out the disability services of prospective unis on line and when you visit,
    *consider somewhere local enough for far enough away to be independent,
    *the course leader/tutors experience and willingness to learn about ASD and how they can help avoid problems.

    Good luck with it all,
    Lulu :-)

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