Published on 12, July, 2020
It really annoys me, my brother has CMT and there is a weekend expecally for him and he found his gf there who also has CMT.
I have High functioning Autisim and there is nothing for us, no weekend meetup that takes place every year. Wouldn't it be great if we could atcually have something like that, i might of met a girl if that had happened
When conducting my own research into my own condition I was advised by NAS to look at the Research Autism website where articles were listed investigating the causes and symptoms/treatments for autistic related conditions. At that time NAS were not involved in any research themselves.
Today, having read this thread, I revisited that website and note Research Autism is being absorbed by the NAS and will spend its remaining research grants on completing work in hand but not start any other research in its own right.
The first time I visited that website I noted that a company called Axis recruitment agency was listed as a major sponsor of NAS. Their purpose is to recruit health and social care staff on behalf of clients. Not sure if this includes the NHS or not.
I admit being surprised by that at the time. There seemed to me to be a potential conflict of interest between a charity and a professional recruitment agency.
Research Autism was a registered charity like NAS. Not sure if this is relevant to this thread but I offer the information anyway.