Diagnosed a month ago - umm help?!

I got a diagnosis a month ago, it was a long time coming. me and my family had our suspicions for a while. Last summer I had an assesment and the result came through in January. Initially the assessor said he was on the fence about it and said well either way i'm not "normal". In the end they decided I was on the spectrum; Level 1 and High functioning.

But now i don't know what to do. It's unsettling because i'm seeing lots of things in a new light, and am able to get that, for example, i'm freaking out in this situation because i'm autistic and my brain is wired differently to other people. But that is about as far as my understanding goes. I'm wired differently. But it still scares me because it's a big thing to get the hang of. (and i don't like change!)

I live at home with my parents and 12 year old sister. She's a normal pre-teen and when she acts like one, i find it difficult sometimes. I don't know what she makes of my autistic moments, sometimes i feel she acts like it's just a quirk, other times she's unsympathetic and talks to me like i'm a toddler when i get upset about some of her normal adolescent behaviour. (moods, ignoring me, being inscrutable etc.)

I don't really know who to talk to. I have two online friends who have autism, but i don't feel comfortable or socially confident bringing it up. (they have their own troubles anyway) and i'm also concerned my parents don't know what to do either.

Both are really really loving and supportive, (when i got diagnosed my dad said it was like having superpowers) my mum tries to be patient with me, we even joke about it sometimes, but sometimes she gets frustrated at me too.

What do i do?!

Help please anyone!?!

Parents
  • Former Member
    Former Member

    Firstly, welcome to the forum. This has been a massive help for me over the last three years since I got diagnosed (at the age of 56!) Diagnosis does take some getting used to but I have found that my life has just got a lot better since then. I found a really useful book ( www.amazon.co.uk/.../1606236342 ) before I got diagnosed and I think it is a good place for newly diagnosed people to start.

    The forum has a range of members, some have more problems than others but I would hope that you will learn a lot and not be put off by some of the things that you will read here. Autistic people are not the most socially skilled sometimes so please make allowances before diving into an argument with someone who may have more issues than you.

Reply
  • Former Member
    Former Member

    Firstly, welcome to the forum. This has been a massive help for me over the last three years since I got diagnosed (at the age of 56!) Diagnosis does take some getting used to but I have found that my life has just got a lot better since then. I found a really useful book ( www.amazon.co.uk/.../1606236342 ) before I got diagnosed and I think it is a good place for newly diagnosed people to start.

    The forum has a range of members, some have more problems than others but I would hope that you will learn a lot and not be put off by some of the things that you will read here. Autistic people are not the most socially skilled sometimes so please make allowances before diving into an argument with someone who may have more issues than you.

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