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Telling my son he's got AS

missmoo

Hi

 

I'm new to the forum but need some help from people who live with AS be it parent, carer or whatever. My son is 12 he has high-functioning ASD diagnoised when he was  nearly 6 yrs old. Since moving to a comprehensive school his anxiety levels are extremely high (anxiety has always been high but got worse in recent months). Over the last few months we have had more outside agencies involved because I couldn't cope with his more frequent outbursts. He is very very reluctant to change and is ruled by routine and obsessions but a fantastic child who is very intelligent. We have had a Barnardos worker visit the house the last 3 wks but he is questioning more and more bout why she is coming. She is trying to get a sessional playworker to help with his social skills as he has no friends and stays at home a lot.

 

I guess overall my question is how do I tell him? When I contacted the ASD Ed Psych the other day it's always read this book or that or get involved with a support group in my area but I work full time and work term time so time off on a frequent basis is difficult. I need advice from people who have done it so I don't get it wrong!

Parents

  • I had to tell DS when he was 9, one night when I went upstairs I found him in my bed crying, he wanted to know why he was different!  It was heartbreaking. 

    Because he was only 9, I did find some of the books useful, but also talked to him about how everyone is different.  It's really hard to know what to do, but I found since then DS is more aware of his own sensory issues and will say if he doesn't like something.  I was completely honest with DS and we had a chat about it, it also helped that there are other family members with ASD. 

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  • I had to tell DS when he was 9, one night when I went upstairs I found him in my bed crying, he wanted to know why he was different!  It was heartbreaking. 

    Because he was only 9, I did find some of the books useful, but also talked to him about how everyone is different.  It's really hard to know what to do, but I found since then DS is more aware of his own sensory issues and will say if he doesn't like something.  I was completely honest with DS and we had a chat about it, it also helped that there are other family members with ASD. 

Children
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