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Telling my son he's got AS

missmoo

Hi

 

I'm new to the forum but need some help from people who live with AS be it parent, carer or whatever. My son is 12 he has high-functioning ASD diagnoised when he was  nearly 6 yrs old. Since moving to a comprehensive school his anxiety levels are extremely high (anxiety has always been high but got worse in recent months). Over the last few months we have had more outside agencies involved because I couldn't cope with his more frequent outbursts. He is very very reluctant to change and is ruled by routine and obsessions but a fantastic child who is very intelligent. We have had a Barnardos worker visit the house the last 3 wks but he is questioning more and more bout why she is coming. She is trying to get a sessional playworker to help with his social skills as he has no friends and stays at home a lot.

 

I guess overall my question is how do I tell him? When I contacted the ASD Ed Psych the other day it's always read this book or that or get involved with a support group in my area but I work full time and work term time so time off on a frequent basis is difficult. I need advice from people who have done it so I don't get it wrong!

Parents

  • Hi, if you have contact with a speech and language therapist they can be very helpful in chatting through  differences  positively  with work books such as the big A and establishing how much they know already. We began by talking abt everyone being different and how i.e. Some people need a hearing aid to help them and you find busy places and change make you worried and need a bit of help, we all do in different ways. Talking of your own differences and others can make it easier e.g. Asthma, epilepsy, allergies, arthritis, dyslexia, tall, short, bird phobia and so on, drip fed over a period of time. Watching a dvd can be helpful such as 'Adam'. Watch it yourself first to judge when it wld be the right time. If you can chat to the slt that is where i wld start. I used to say all the 'visitors' were there to try and help him with his anxiety and be happy again. Good luck.

Reply

  • Hi, if you have contact with a speech and language therapist they can be very helpful in chatting through  differences  positively  with work books such as the big A and establishing how much they know already. We began by talking abt everyone being different and how i.e. Some people need a hearing aid to help them and you find busy places and change make you worried and need a bit of help, we all do in different ways. Talking of your own differences and others can make it easier e.g. Asthma, epilepsy, allergies, arthritis, dyslexia, tall, short, bird phobia and so on, drip fed over a period of time. Watching a dvd can be helpful such as 'Adam'. Watch it yourself first to judge when it wld be the right time. If you can chat to the slt that is where i wld start. I used to say all the 'visitors' were there to try and help him with his anxiety and be happy again. Good luck.

Children
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