How many with autism really want to work or are able to?

Hi,

I just received an email from the national autistic society as many of you probably have also. It is asking us to sign a petition to put pressure on the government for us to get 'jobs we deserve'.

It claims:

But 77% of unemployed autistic adults, or people responding on their behalf, told us they want to work.


This got me thinking. How many of those responding were only doing so on behalf of those with autism, without stating how the autistic person really felt. For example if you ask my mother, she would say I do want to work. Stating I can & should want to work. She will then quote her Christian beliefs to say it's an order. But personally I don't wish to work because I know it leaves me suicidal etc, no matter how much support I were to have.

Obviously I'm not signing the petition. But it could still be signed by those such as my mother, on behalf of those with autism. Making it of benefit to the economy, but of little benefit to many with autism.

The state already tries to force us to work & refuses to acknowledge that many of us can't. It stops our benefit, leaving us with nothing to live on, pay bills with nor council tax (which many are now forced to pay). I view my council tax, as a tax on me having autism! All this seems against human rights & even migrants here don't have to tolerate this. This petition could give a very dangerous get out of jail free card to government, to do even worse.

  • How is your health bad Senator? Is someone helping you?

    Please keep positive as it seems from your post you know what you want to do and that is a great start....

    Sending you positive vibes

  • Hello trainspotter,

    I totally empathize with your situation - I felt like that in my last job when I let the poor treatment of others get to me and it caused me great stress - I need to work because I used to buy things to make me happy but as you can guess, it didn't.

    Is there a possibility for you to work in an environment that values your skills? I have been lucky to find such a place now and I keep pinching myself for the last 7 months..

    It is my mother who tells me to be grateful....even at 46 she can wind me up and I have a low tolerance for her attitude....let's not go there.

    How long since you were diagnosed?

    Keep the faith mate as it sounds like you know what you want....I listened to a podcast today and the chap talked about having a journal and starting off by writing down what you value.....that would be a difficult one for me....have kin of drifted along over the last years waiting for happiness to find me....

  • A lot of people will say I'm lucky.  I have a job. 

    It gives me money, not a lot, but I can support myself.  But what it doesn't give me is satisfaction.  It causes me great anxiety.  I dread going to work each day.  And trying to explain the reasons for my anxiety gets remarks about how negative I am.  The managers think I need 'support' to get me to do work I absolutely hate.

    What I do want is to do a job I have skills at.  I will always be useless at telephone work, at work that is tedious which I am forced to do in a way I am unhappy with.  At working as a 'team' member.  At working in an office full of other people.  At continually being interrupted.  And no amount of 'support' will change this.  The support I need is being left alone to concentrate on the job in hand, in being able to use my mathematical skills my IT skills, my logic skills and skills of concentration on a job that allows me to think.  And all these have been taken away from me in the past few years in the cause of 'reorganisation'.

    Work does not always give peace of mind and a sense of purpose.  I often wonder what I am there for. 

    And the feeling of the management is that I should be grateful I have a job.

  • ClaireHig said:

    Hi,

    I just received an email from the national autistic society as many of you probably have also. It is asking us to sign a petition to put pressure on the government for us to get 'jobs we deserve'.

    It claims:

    But 77% of unemployed autistic adults, or people responding on their behalf, told us they want to work.


    This got me thinking. How many of those responding were only doing so on behalf of those with autism, without stating how the autistic person really felt. For example if you ask my mother, she would say I do want to work. Stating I can & should want to work. She will then quote her Christian beliefs to say it's an order. But personally I don't wish to work because I know it leaves me suicidal etc, no matter how much support I were to have.

    Obviously I'm not signing the petition. But it could still be signed by those such as my mother, on behalf of those with autism. Making it of benefit to the economy, but of little benefit to many with autism.

    The state already tries to force us to work & refuses to acknowledge that many of us can't. It stops our benefit, leaving us with nothing to live on, pay bills with nor council tax (which many are now forced to pay). I view my council tax, as a tax on me having autism! All this seems against human rights & even migrants here don't have to tolerate this. This petition could give a very dangerous get out of jail free card to government, to do even worse.

    I didn't get this email, so it's likely that I have probably missed it so I will go back through my emails and try and find it.

    I myself have never had a job and I am 19 now. I'm not good with people and when I do go out I usually end up feeling faint or sick, so I've never been in a work enviroment in my life! I like the idea of working, especially in a nice little shop maybe like WHSmith or possibly a local little shop but currently my health is very bad so I can't.

  • Sounds like a really great idea Stephen - I know about the meltdowns with my former manager - he was a micro manager and I tried to explain what leaders should do for their employees and he didn't like that....

    It is a breath of fresh air to know we have ASD and that we have great ideas....and yes, I totally agree about becoming a novelist - I want to become a coach and help others....

    I think though the missus is a bit worn out after 12 years of me being me and that is a hard thing too.....maybe one day :)

  • I'm high-functioning ASD and I not only want to work, I have worked.

    That said, I have had trouble getting myself across at times in interviews, left my only permanent job after problems with my manager where I ended up having several meltdowns and would really like to be a full-time novelist so I don't have to go to an office all the time.

  • No need to apologise Random - everything you said was true.....

    Nice to see though that manufacturing is returning to the UK from low cost countries - I live in DK now and Denmark still manages to compete for manufacturing and it is great to see that industry in DK actually uses locally built items too.....

    We have to get away from using "cheap" labour just because it keeps shareholders happy....I know the people in "cheap" labour locations need the money however, it shouldn't be at the detriment of others

  • So true Vometia....it is wrong to ship jobs abroad for the sake of saving a few quid....the company I work for now is a family owned company and it makes a difference that they don't have shareholders to placate however, they do have bases in all the low cost countries however, they are there and giving good employment. That being said, it is always a toss up between making money and doing the right thing eh? 

    Seems us on the autism spectrum have a sense of right and wrong and we don't like seeing injustice and now that I know, it feels better that I am not alone and that we want to do the right thing.

    Have you kids? If so, do any of them have autism / aspergers?

  • Hi,

    As working from home came in to fashion, technology advanced, which meant work could be resourced remotely on a global scale. This led to outsourcing this work to the lowest bidder, and India became a very big winner.

    One of the largest BT research labs is near me, and employs thousands of IT workers. I briefly landed some work there, and that was only from a personal recommendation of someone who already worked for them. BT used an agency to recruit, and jobs were not advertised in UK,  they were pursued in India with an office based there and big outsourcing organisations that were booming.

    Problem with outsourcing is lack of training, apply for job in UK and employers want someone with experience, even graduate positions. With the outsourcing in India, this was not the case. Unskilled employees would work alongside or remotely with experienced members, in the understanding that they would pick up the skills quickly, although the company outsourcing them were under the impression it was all skilled labour.

    Problem is a fair proportion of the unskilled employees had no interest in the career (it was the only thing available to them), or did not have the capability to gain the level of skill needed. Not to mention communication problems. This led to problems on project, and outsourcing has now gone out of fashion.

    That's a good thing for UK, as we simply just can't compete on price with some countries because the cost of living is very different.

    Sorry, a bit of a rant, but just putting my thoughts down. 

    Random

  • Hey Electra,

    You are so right, it is not the question of us not being able to get a job - I have had the senior positions and high salary to boot however, it isn't worth a toss when us Aspies have such a difficult time with the political BS of big organisations...

    I argued so much with my former boss because I hated the way at management meetings we would tear strips off our employees and then go back and do nothing about it....

    I was bullied in school because I couldn't do humour or understand when people were teasing because I didn't understand why they would do that on me and that only made it worse and I have seen this follow me all my life until I went to a coach here this year who spotted I have Aspergers instead of ADHD.

    In relationships it also hard because you think you are doing ok and your other half is tearing their hair out.....

    So we Aspies have so much to give and are not bad people and I wish more were like GCHQ because it seems they have the right attitude. Also, engineering companies are good with Aspergers because a lot of engineers have it - I now work for an engineering company and I love the entrepreneurial spirit of the place - am trying to find another position in the company I am in though because the department I am in is political and purely driven by savings....

    How are you doing in your job now? Are things ok?

    Hugs

  • I too am disappointed with the NAS camapign around adults and work.

    Firstly I found the campaign video just baffling and I don't think a neurotypical person would make any more sense of it. Also it reinforces the idea that we are unstable and prone to outbursts in public places. Not something likely to attract employers so why has the NAS portrayed us in this light? I  would have found it more informative to  have two autistic people discussing the problems they've faced at job interviews.

    Secondly its not getting a job that many of us find hard, its keeping it and keeping our sanity. Almost every autistic person who has worked has experience of unhelpful managers, office politics and horrible work environments that resulted in stress and poor health. Requests made for reasonable adjustments under the Equalties Act are routinely refused by ill-informed managers and employers would rather we left than make the effort to integrate us into the workforce.

    And not all of us can work even if we would like to.

    At GCHQ, where a high proportion of staff are autistic, there are specialist support systems in place to make sure they get the best out of their talented and skilled neurodiverse workforce. This is what we need NAS, not videos of us having public meltdowns. I would just hate my manager to see that video.

  • Hey there,

    We Aspies have so much to offer.....and it is only now that I understand that I am an Aspie, I can start to live...

    If I were to tell my former boss about me now and why he was always on my case, I wonder would he change his attitude....

    Now, I have a great boss and great company....I still worry and am still anxious however, now that I know I am different, I can get the help to become stronger and face down the sh!ts we meet as we go along.

    A friend of mine told me yesterday, my trusting people is the way we should always be....except we are conditioned not to trust eh?

    Sorry to hear about the dark place....I too have been there...

    I have to say, it is so refreshing to talk to others like me now :) I hope we all get to meet some day

  • I see that many assume people with Aspergers are too difficult to work with or having an ASD diagnosis makes you handicap and unable to live independently. I have worked since I was 14 and am 41 now. I like working and am very good at what I do. I enjoy my job, it feeds my obsession with numbers and math and it keeps the depression away. I stayed home once for 4 months and started slipping back into the dark place. I'm not sure if I'll ever stop working in one way or another, whether it be for a paycheck or volunteering. I need the schedule and consistency in my life.

  • Oh yes.....I know all too well about the high paying job....two years ago I was never off a plane - ended up being 2.500 points away from reaching Platinum with the airline and then I prolapsed 4 discs in my neck and ended up being out sick and while I was out sick, they killed my position.....

    Then I got a new job last year which really didn't suit me as I couldn't read my boss and I ended up rowing with him all the time so we agreed to part company....he was a bit of a micro manager and I tried to be something I wasn't so let's just say it takes two to tango :)

    Sounds like you and I should start a movement to allow us wonderful people to shine and bring their delight to the world.....I am a firm believer we have so much to offer as do you :)

  • NAS22687 said:

    They want to work but feel more comfortable at home, if the goverment could create job opportunitys to work online from home for people with autism i 100% belive you would have lots more autistic people working.

    This bit in particular is something that I've repeatedly asked about and repeatedly been refused: I'm a computer programmer, I can work from home effectively and indeed I did so in the mid '90s.  It worked very effectively: I got my work done without the stress and distractions, I didn't start work knackered because I only commuted across my landing, the company saved money because it wasn't required to house me in an office.

    But since then?  No chance.  In spite of the technology having advanced in that time and there being more and more of a reason for allowing working from home what with the congested roads and stuff, every manager I've worked for has been a supicious, distrusting, shoulder-surfing control-freak.  So my options were work in an unpleasant office environment or don't work at all.  So I worked in an office environment until my health deteriorated to the point where I didn't work at all.  So unnecessary.

    Sadly, I don't see attitudes changing, at least not without legislation.  Unless there's an obligation on employers to treat their staff with the appropriate level of consideration and basic humanity, many of them won't ever do it.  Yet the person who finds themselves unable to work is the one who's maligned as a lazy, feckless scrounger who has no use to society because they're a broken machine not making money for somebody else.  I suppose it's rather apparent that I'm less than impressed with some judgemental attitudes I've encountered in that regard; which, incidentally, invariably come from some of the laziest bums I've ever known.

    [/quote]

    As you explained it is the perfect type of work for people with autism

    And there is so much potential in this area of work, the goverment needs to open it up to us because they can give us these opportunites they just need to create them because employers wont.

    Working from home online i personally belive is the best option.

    And especially for you having the experience you do as a computer programmer

  • Hey Vometia,


    Reading your post was a breath of fresh air in that I too fell apart last year (45) and ended up agreeing to leave my company because I was struggling with all the politics within the workplace.

    I was diagnosed with ADHD 5 years ago however, I have struggled with the diagnosis - was put on meds that didn't agree with me and stopped for 4 years and tried them again last year when my son was diagnosed with ADHD and Atypical Autism - so went on them for a year and found myself an ADHD coach - the ironic thing is that she has said I have Aspergers instead of ADHD and now that I understand what Autism is, I really understand everything I have gone through....

    I am working again for the last six months with a company that allows me work from home and I find it is so good for me - I get my work done, don't get sucked into distractions and office politics....and in my case, not able to judge the mood of people or read signals as well as trusting too many people and getting stabbed in the back...

    You are also so right about wanting to work and those attitudes that exist in companies these days - we peope with Autism have so much to offer and it would be great if companies actually stood up and took notice eh?

    Thanks again for the wonderful post :)

  • The benefit assessment already seems to assume that 'fit for work', includes working from home. The government don't care if the work is there, just the fact that you could do it if it was.

    For example I stated in my PIP claim that I don't go out & have to order groceries to my home. They will then assume that I could use a computer. And am capable of meeting new people. Even if I explain that I don't speak to the driver or look at them. I have no focus. It will take me many hours & often result in me losing many order slots.

    The DWP couldn't care less. They won't even let me claim PIP because I predictably couldn't get to the assessment. And apparently my Asperger's problems aren't a good reason for not going. I couldn't even phone them to disagree. And my advocate is stalling helping me appeal an already late appeal. Due to me not even receiving their mandatory reconsideration refusal response. 

    In a lot of cases it may not matter how compassionate an employer is. People would still be too traumatised by the demands of work. Even at home in a quiet setting with no people. And easy same repetitive tasks if that suits them, many would still be unable to cope. The fact is even with much support there are those who still won't be able to work in any sense. Whether they were always that way or became that way due to past work traumas.

  • There is an asumption amongst general public that all people with autism do not work and this is not true, i work and many other people i know that have autism do..

    I belive the petition should focus on the type of work autistic people want to do rather than them just saying 77% of them want work.

    It is the type of work that puts most autistic people off working.

    For example working with new people and everyone knowing you have a dissability and all the sensory troubles can be off putting for most people with autism.

    They want to work but feel more comfortable at home, if the goverment could create job opportunitys to work online from home for people with autism i 100% belive you would have lots more autistic people working.

    This petition is of a greater interest and benefit to the goverment than people with autism.

    Because it is the goverment that needs to make these types of opportunitys available.

    I think the pettition should be for the goverment to create work online from home jobs and also offer opportunites in areas autistic people enjoy and working under guided supervision with a very short amount of hours working in a more relaxed and non pressured enviroment with other people with autism would be much more appealing. 

    For autistic people that work including myself and those that dont work, the most important things we would like from the goverment are

    To cut waiting times for a diagnosis from 3.5 years to weeks not years.

    Provide garunteed support to all people with autism, regular talking thearapy and check ups, PIP, free gymn memberships, free prescriptions and bring autism support in line with the usa.

    And invest more money in to research for new medicines and treatments for autisim.

    While there are autistic people attempting suicide or homeless the most important things the goverment needs to focus on right now giving all people with autism a better quality of life and cut autistic peoples suicides.

    The are all important things autistic poeple want the goverment to improve.

  • Firstly there is an asumption amongst general public that all people with autism do not work and this is not true, i work and many other people i know that have autism do..

    I belive the petition should focus on the type of work autistic people want to do rather than them just saying 77% of them want work.

    It is the type of work that puts most autistic people off working.

    For example working with new people and everyone knowing you have a dissability and all the sensory troubles can be off putting for most people with autism.

    They want to work but feel more comfortable at home, if the goverment could create job opportunitys to work online from home for people with autism i 100% belive you would have lots more autistic people working.

    This petition is of a greater interest and benefit to the goverment than people with autism.

    Because it is the goverment that needs to make these types of opportunitys available.

    I think the pettition should be for the goverment to create work online from home jobs and also offer opportunites in areas autistic people enjoy and working under guided supervision with a very short amount of hours working in a more relaxed and non pressured enviroment with other people with autism would be much more appealing. 

    For autistic people that work including myself and those that dont work, the most important things we would like from the goverment are

    To cut waiting times for a diagnosis from 3.5 years to weeks not years.

    Provide garunteed support to all people with autism, regular talking thearapy and check ups, PIP, free gymn memberships, free prescriptions and bring autism support in line with the usa.

    And invest more money in to research for new medicines and treatments for autisim. While there are autistic people attempting suicide or homeless the most importnat things the goverment needs to focus on right now giving all people with autism a better quality of life and cut autistic peoples suicides.

    These are the most important things autistic poeple want to petition the goverment with.

  • Hello everyone,

    The benefit system was introduced to help people inbetween unemployment. A safety net.

     If we were in a country with no benefit

     We would have to rely on family.   Or find creative ways to make money.  

    Relying on my family would mean I would have walked naked & starved already.

    To be fair exclude my Mum from the bad attitude. Most of the time she helps me practically.

    I appreciate the benefit system,because I have seen real poverty abroad.

    If you think relying on the government to sort all peoples problems is realistic I feel you will be  deeply disappointed in this life.

    As for their decision about disability entitlement.  Each person is affected by their   Autism differently.  Means testing is reasonable.  Give to those who need it.

    I spent a lot of time when I was younger with hfa young people or adults. Work related.

    Most of which wantend to have their own money they earned.  

    Who are the Autistic Adults that struggle through life,but manage to work & have some level of independence ?

    I personally think it's those born into families that are supportive. Who have the money to get the support they need. Without having to rely on the state.

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